Parents' perspectives of factors affecting parent-adolescent communication about type 1 diabetes and negotiation of self-management responsibilities.

IF 1.3 4区 医学 Q3 NURSING Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-18 DOI:10.1177/13674935221146009
Caroline Rawdon, Sophia M Kilcullen, Nuala Murphy, Veronica Swallow, Pamela Gallagher, Veronica Lambert
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Abstract

Adolescence is an important time in which young people take on type 1 diabetes (T1D) self-management responsibility. Parents are key facilitators of this process. Little is known about parents' experiences of communicating with their children about T1D during adolescence. Semi-structured interviews were conducted with 32 parents (24 mothers and 8 fathers) of adolescents (11-17 years) living with T1D to explore how parents communicate about T1D and self-management with their adolescent children. Parents were recruited through two national child and adolescent diabetes and endocrine clinics and online advertisement through a national diabetes advocacy organisation. Interviews were transcribed verbatim and thematically analysed. Six themes were identified: parent factors, quality of the parent-adolescent relationship, communication strategies, adolescent factors, communication triggers and family/system factors. Understanding factors that impact communication about self-management between parents and adolescents will enable healthcare professionals to provide support and targeted interventions as parent and adolescent roles change over time.

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从家长的角度看影响家长与青少年就 1 型糖尿病进行沟通以及协商自我管理责任的因素。
青春期是青少年承担 1 型糖尿病 (T1D) 自我管理责任的重要时期。父母是这一过程的关键推动者。人们对父母在青少年时期与子女沟通 T1D 的经历知之甚少。我们对患有 T1D 的青少年(11-17 岁)的 32 位家长(24 位母亲和 8 位父亲)进行了半结构式访谈,以探讨家长如何与青少年子女就 T1D 和自我管理进行沟通。我们通过两家全国性儿童和青少年糖尿病及内分泌诊所以及一家全国性糖尿病宣传机构的在线广告招募家长。对访谈内容进行了逐字记录和主题分析。共确定了六个主题:家长因素、家长与青少年关系的质量、沟通策略、青少年因素、沟通触发因素以及家庭/系统因素。了解影响家长与青少年就自我管理问题进行沟通的因素,将有助于医护人员在家长和青少年的角色发生变化时提供支持和有针对性的干预措施。
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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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