Integrating primary palliative care into hidradenitis suppurativa management.

Terri Shih, Monica Zell, Daniel Karlin, Devea R De, Jan Smogorzewski, Vivian Y Shi, Jennifer L Hsiao
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Abstract

Hidradenitis suppurativa (HS) is a chronic, often debilitating skin condition that disproportionately impacts women in the United States and other Western nations. Dermatologists should consider incorporating palliative care principles into HS management to optimize care. Primary palliative care principles include utilizing evidence-based frameworks in serious illness communication, acknowledging and addressing physical and psychosocial suffering, recognizing and validating the burden of disease in partners, families, and caregivers, and engaging in collaborative care coordination. Certain patients may also benefit from outpatient, or sometimes inpatient, palliative care specialist collaboration, such as those with refractory HS and superimposed challenging psychosocial dynamics and symptom burden. Through integration of these palliative care domains into HS care, dermatologists can optimize their ability to provide comprehensive and compassionate care for patients suffering with this disease.

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将初级姑息治疗纳入化脓性汗腺炎管理。
化脓性汗腺炎(HS)是一种慢性,经常使皮肤衰弱的疾病,对美国和其他西方国家的女性影响很大。皮肤科医生应考虑将姑息治疗原则纳入HS管理,以优化护理。初级姑息治疗原则包括在严重疾病沟通中利用循证框架,承认和解决身体和心理痛苦,承认和确认伴侣、家庭和照顾者的疾病负担,以及参与协作性护理协调。某些患者也可能受益于门诊,或有时住院,姑息治疗专家合作,如那些难治性HS和叠加具有挑战性的心理社会动力学和症状负担。通过将这些姑息治疗领域整合到HS护理中,皮肤科医生可以优化他们为患有这种疾病的患者提供全面和富有同情心的护理的能力。
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来源期刊
CiteScore
4.70
自引率
0.00%
发文量
52
审稿时长
18 weeks
期刊介绍: The IJWD publishes articles pertaining to dermatologic medical, surgical and cosmetic issues faced by female patients and their families. We are interested in original research articles, review articles, unusual case reports, new treatments, clinical trials, education, mentorship and viewpoint articles. Articles dealing with ethical issues in dermatology and medical legal scenarios are also welcome.Very important articles will have accompanying editorials. Topics which our subsections editors look forward to welcoming include: Women’s Health Oncology, Surgery and Aesthetics Pediatric Dermatology Medical Dermatology Society.
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