Diagnostic delay in axial spondylarthritis: A lost battle?

IF 4.5 2区 医学 Q1 RHEUMATOLOGY Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI:10.1016/j.berh.2023.101870
Rosemarie Barnett , Karl Gaffney , Raj Sengupta
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Abstract

Diagnostic delay in axial spondylarthritis (axSpA) remains an unacceptable worldwide problem; with evidence suggesting significant detrimental impact both clinically on the individual, and economically on society. There is therefore, a need for global action across various healthcare professions that come into contact with patients living, and suffering, with undiagnosed axSpA. Recent estimates of the median diagnostic delay suggest that globally, individuals with axSpA wait between 2 and 6 years for a diagnosis – revealing a clear benchmark for improvement. This timespan presents a window of opportunity for earlier diagnosis and intervention, which will likely improve patient outcomes. This review describes the current diagnostic delay as estimated across countries and over time, before presenting evidence from published strategies that may be implemented to improve this delay across primary and secondary care, including for specialties treating extra-musculoskeletal manifestations of axSpA (ophthalmology, gastroenterology, dermatology). Ongoing campaigns tackling delayed diagnosis in axSpA are also highlighted.

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轴性脊椎关节炎的诊断延误:一场失败的战斗?
轴性脊柱关节炎(axSpA)的诊断延误仍然是一个令人无法接受的世界性问题;有证据表明,这对个人的临床和社会的经济都会产生重大不利影响。因此,有必要在与未确诊 axSpA 患者接触的各医疗保健专业领域采取全球性行动。最近对诊断延迟中位数的估计表明,在全球范围内,axSpA 患者等待诊断的时间在 2 到 6 年之间,这是一个明确的改进基准。这一时间跨度为更早诊断和干预提供了机会之窗,很可能会改善患者的预后。本综述描述了目前各国的诊断延迟情况,并介绍了随着时间的推移而估计出的延迟情况,然后介绍了已发表的策略证据,这些策略可用于改善初级和二级护理中的延迟情况,包括治疗 axSpA 肌肉骨骼外表现的专科(眼科、消化科、皮肤科)。此外,还重点介绍了为解决轴性SpA诊断延迟而正在开展的活动。
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来源期刊
CiteScore
9.40
自引率
0.00%
发文量
43
审稿时长
27 days
期刊介绍: Evidence-based updates of best clinical practice across the spectrum of musculoskeletal conditions. Best Practice & Research: Clinical Rheumatology keeps the clinician or trainee informed of the latest developments and current recommended practice in the rapidly advancing fields of musculoskeletal conditions and science. The series provides a continuous update of current clinical practice. It is a topical serial publication that covers the spectrum of musculoskeletal conditions in a 4-year cycle. Each topic-based issue contains around 200 pages of practical, evidence-based review articles, which integrate the results from the latest original research with current clinical practice and thinking to provide a continuous update. Each issue follows a problem-orientated approach that focuses on the key questions to be addressed, clearly defining what is known and not known. The review articles seek to address the clinical issues of diagnosis, treatment and patient management. Management is described in practical terms so that it can be applied to the individual patient. The serial is aimed at the physician in both practice and training.
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