Shifting Perspectives: A Qualitative Study to Understand Family Expectations at the Time of Their Child's Admission.

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES Journal of Patient-Centered Research and Reviews Pub Date : 2023-01-01 DOI:10.17294/2330-0698.1947
RosaMarie Maiorella, Avital Fischer, Sumeet L Banker
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Abstract

Purpose: Patient-centered approaches to health care acknowledge the important role that families have in patients' lives. Shared expectations between families and providers have the potential to improve patient and family experience, hospital care, and outcomes. We aimed to understand families' expectations for their child's admission from the vantage point of the start of a hospital stay.

Methods: This qualitative research studied families of hospitalized children at a large pediatric tertiary care center. Family members were approached if their child was admitted to the general pediatrics team, was under 18 years of age, had a length of stay less than 5 days, and had an English-speaking family member present. Semi-structured interviews were conducted by study personnel during the inpatient stay and audio-recorded. Written transcripts were independently coded by multiple investigators to generate codes, which were reconciled via triangulation. Codes were translated into broad themes to provide insight into the views of the study population. An accompanying survey included demographic questions.

Results: We conducted 20 interviews with 23 parents of hospitalized children. Participants were 83% female, 35% White, 22% Black, 35% Hispanic, and 70% publicly insured. Participant responses led to identification of 4 themes: 1) setting the stage; 2) building trust and credibility; 3) partnering with families; and 4) maintaining frequent and transparent communication.

Conclusions: Findings suggest that families' priorities and expectations at the start of their inpatient stay focus on issues of trust, partnership, and communication. These concepts may help providers strengthen communication and create more meaningful partnerships with families.

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转变视角:一项了解孩子入学时家庭期望的定性研究。
目的:以患者为中心的卫生保健方法承认家庭在患者生活中的重要作用。家庭和医疗服务提供者之间的共同期望有可能改善患者和家庭的体验、医院护理和结果。我们的目的是从住院开始的有利位置了解家庭对孩子入院的期望。方法:本定性研究以某大型儿科三级护理中心住院儿童的家庭为研究对象。如果他们的孩子被普通儿科小组录取,年龄在18岁以下,住院时间少于5天,并且有讲英语的家庭成员在场,则与家庭成员联系。在住院期间由研究人员进行半结构化访谈并录音。书面记录由多个调查人员独立编码以生成代码,并通过三角测量进行协调。代码被翻译成广泛的主题,以深入了解研究人群的观点。附带的调查包括人口统计问题。结果:对23名住院患儿家长进行了20次访谈。参与者83%为女性,35%为白人,22%为黑人,35%为西班牙裔,70%为公共保险。参与者的回答导致了4个主题的确定:1)设置舞台;2)建立信任和信誉;3)与家庭合作;4)保持频繁和透明的沟通。结论:研究结果表明,家庭在住院治疗开始时的优先事项和期望集中在信任、伙伴关系和沟通问题上。这些概念可以帮助提供者加强沟通,并与家庭建立更有意义的伙伴关系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Patient-Centered Research and Reviews
Journal of Patient-Centered Research and Reviews HEALTH CARE SCIENCES & SERVICES-
自引率
5.90%
发文量
35
审稿时长
20 weeks
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