When and how to enlighten citizens on genetics and hereditary cancer: a web survey of online video viewers.

IF 1.5 Q4 GENETICS & HEREDITY Journal of Community Genetics Pub Date : 2023-12-01 Epub Date: 2023-09-16 DOI:10.1007/s12687-023-00663-x
Reimi Sogawa, Takahito Wada, Noriyuki Yamashita, Mariko Kochi, Mashu Futagawa, Fumino Kato, Yusaku Urakawa, Yayoi Tanimura, Hideki Yamamoto, Shuta Tomida, Shinji Kosugi, Akira Hirasawa
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Abstract

With the rapid expansion of genomic medicine, more citizens are compelled to think about genetics in their daily lives. This study aims to explore appropriate types of educational media and methods to enlighten activities for genetics and hereditary cancer. We presented an 18-min YouTube video on genetics and hereditary cancer to participants at a scientific event, Science Agora 2020, and administered a web questionnaire to investigate their opinions about when and how citizens should start learning about genetics and hereditary cancer. We recruited 133 participants who watched the video, and 26.3% (35/133) responded to the questionnaire. Most of them were evaluated to understand and appreciate the contents of the video. They identified websites, or videos as suitable learning media, irrespective of their sex, age, or profession. They highlighted upper elementary school or junior high school as appropriate educational stages to start learning about genetics and hereditary cancer to facilitate collecting their own genetic information by themselves. Our findings show that educational institutions should provide opportunities to learn about genetics and hereditary cancers, especially for upper elementary school and junior high school students, using learning media, such as videos, depending on their level or demand.

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何时以及如何向公民宣传遗传学和遗传性癌症:对在线视频观众的网络调查。
随着基因组医学的迅速发展,越来越多的人不得不在日常生活中思考遗传问题。本研究旨在探索合适的教育媒体类型和方法,以开展遗传学和遗传性癌症启蒙活动。我们在科学活动 "Science Agora 2020 "上向参与者展示了一段 18 分钟的有关遗传学和遗传性癌症的 YouTube 视频,并发放了一份网络问卷,以调查他们对公民应何时以及如何开始学习遗传学和遗传性癌症的看法。我们招募了 133 名观看视频的参与者,其中 26.3%(35/133)对问卷做出了回复。经评估,大多数人都能理解和欣赏视频内容。无论性别、年龄或职业,他们都认为网站或视频是合适的学习媒体。他们强调,小学高年级或初中是开始学习遗传学和遗传性癌症的适当教育阶段,以便于自己收集遗传信息。我们的研究结果表明,教育机构应根据学生的水平或需求,利用视频等学习媒体,为他们提供学习遗传学和遗传性癌症知识的机会,尤其是为小学高年级和初中生。
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来源期刊
Journal of Community Genetics
Journal of Community Genetics GENETICS & HEREDITY-
CiteScore
3.30
自引率
5.30%
发文量
54
期刊介绍: The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.
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