Characterization and reliability of internet resources on pulmonary rehabilitation for individuals with chronic lung disease.

IF 3.5 3区医学 Q2 RESPIRATORY SYSTEM Chronic Respiratory Disease Pub Date : 2023-01-01 DOI:10.1177/14799731231158119

Tania Da Silva, Ashira Lokhandwala, Noor Al Kaabi, Julie Semenchuk, Gillian C Goobie, Encarna Camacho, W Darlene Reid, Jolene H Fisher, Christopher J Ryerson, Dmitry Rozenberg

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引用次数: 2

Abstract

Background: Individuals with lung disease commonly use the internet as a source of health information on pulmonary rehabilitation (PR). The objective of this study was to characterize internet resources on PR, and to assess the content, readability, and quality of patient-directed PR resources.

Methods: The first 200 websites for the search term 'pulmonary rehabilitation resources and exercise' were analyzed on Google, Yahoo, and Bing. Website content was assessed based on 30 key components of PR from the 2013 and 2021 international consensus statements. Website quality was determined using DISCERN, JAMA benchmarks, and Global Quality Scale (GQS).

Results: 66 unique PR websites were identified with the two most common categories being scientific resources (39%) and foundation/advocacy organizations (33%). The average reading level of websites was 11 ± 3. PR content varied significantly across websites (mean range 13.4-21.5). Median DISCERN total score and GQS score were 4 (IQR 3-4) and 3.5 (IQR 2-4), respectively, representing moderate-good quality. Foundation/advocacy websites had higher DISCERN and GQS scores compared to other websites.

Conclusion: Foundation/advocacy websites had the highest quality and reliability metrics; however, the higher-than-recommended reading levels may compromise patient comprehension and utilization. This study provides critical insight on the current state of online PR health-related information.

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慢性肺病患者肺康复网络资源的特征和可靠性

背景:肺病患者通常使用互联网作为肺康复(PR)健康信息的来源。本研究的目的是描述网路公关资源的特征，并评估以病人为导向的公关资源的内容、可读性和品质。方法:对Google、Yahoo和Bing上搜索“肺康复资源与运动”的前200个网站进行分析。网站内容是根据2013年和2021年国际共识声明中公关的30个关键组成部分进行评估的。使用DISCERN、JAMA基准和全球质量量表(GQS)确定网站质量。结果:66个独特的公关网站被确定为两个最常见的类别:科学资源(39%)和基金会/倡导组织(33%)。网站的平均阅读水平为11±3。不同网站的PR内容差异很大(平均范围13.4-21.5)。辨别总分中位数为4分(IQR 3-4)， GQS评分中位数为3.5分(IQR 2-4)，为中优质量。与其他网站相比，基金会/倡导网站的DISCERN和GQS得分更高。结论:基金会/倡导网站具有最高的质量和可靠性指标;然而，高于推荐的阅读水平可能会损害患者的理解和利用。这项研究对在线公关健康相关信息的现状提供了重要的见解。

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来源期刊

Chronic Respiratory Disease RESPIRATORY SYSTEM-

CiteScore

5.90

自引率

7.30%

发文量

审稿时长

11 weeks

期刊介绍： Chronic Respiratory Disease is a peer-reviewed, open access, scholarly journal, created in response to the rising incidence of chronic respiratory diseases worldwide. It publishes high quality research papers and original articles that have immediate relevance to clinical practice and its multi-disciplinary perspective reflects the nature of modern treatment. The journal provides a high quality, multi-disciplinary focus for the publication of original papers, reviews and commentary in the broad area of chronic respiratory disease, particularly its treatment and management.