Uncertainty to normality using ethnographic and qualitative research: a personal view

Abstract

I t is fascinating for a person born with haemophilia almost 70 years ago to read the very insightful paper ‘What more can we ask for?: an ethnographic study of challenges and possibilities for people living with haemophilia’ by Hughes et al. in this issue of the Journal of Haemophilia Practice. While medical treatments have advanced miraculously over the last seven decades, from fresh frozen plasma to cryoprecipitate and a whole range of factor concentrates, to non-factor therapies and now to the cusp of gene therapy, the