Understanding information practices of interactive personal genomics users

Abstract

The dramatic growth in the availability of personal genomic data to non-experts, and the use of digital media for delivering personal genomic information, raise important HCI questions. We seek to advance the theory and practice of HCI by investigating fundamental issues concerning non-expert interaction with complex scientific information. Specifically, we explore how people use interactive tools to engage with their personal genomic information. We present findings from a study of 63 early adopters of personal genomics, which highlight users' motivations, information practices, and needs.