Patient Advocacy and Health Literacy

Abstract

This chapter presents a reflective analysis based on the literature and on the author's experience regarding the challenges for health professionals and for patients within the scope of the patient advocacy activity, especially in Portugal, where the formal figure of the patient advocate is almost non-existent. Patient Associations, professionals, patients and their families, and citizens in general are unaware of this concept, making it a priority to invest in health literacy and to structure training programs in patient advocacy. The authors believe that there is still a long way to go in Portugal in this matter and that the model, Assertiveness, Clarity of Language, and Positivity (ACP), is an essential model for the entire patient advocacy development process and implementation of the patient advocate figure in the area healthcare. In this chapter, some experiences, projects and the first results of an exploratory study will be presented in order to help in improving the understanding and knowledge of these concepts in Portugal.