Seyyedeh Fatemeh Mousavi Baigi, Masomeh Sarbaz, D. Sobhani-Rad, A. Mousavi, Khalil Kimiafar
{"title":"Rehabilitation Registration Systems: Current Recommendations and Challenges","authors":"Seyyedeh Fatemeh Mousavi Baigi, Masomeh Sarbaz, D. Sobhani-Rad, A. Mousavi, Khalil Kimiafar","doi":"10.30699/fhi.v11i1.388","DOIUrl":null,"url":null,"abstract":"Introduction: In recent decades, following the upward trend of aging, one out of three people in the world need rehabilitation services during the period of illness or injury. Considering the long-term complications and high costs of treatment, the need to follow up and review the evidence to find the best care programs and extensive planning in this field seems mandatory. Registry systems (registration) in this area can provide the necessary evidence for strategic decisions in this field. Of course, launching and developing these systems comes with challenges. Therefore, the purpose of this comprehensive literature review is to examine the challenges and benefits of developing a rehabilitation registration system.Materials and Method: A systematic review, in studies published in English, without time limit and by searching for keywords in the keywords, title and abstract of reliable scientific databases Web of Science, Scopus, PubMed and Science Direct, as well as searching the title of studies in the database Cochrane data was accessed on March 31, 2021. Studies that were a possible answer to the researched question based on the title and content were examined. A total of 1924 related studies were identified; And finally, 32 qualified articles were included in this review.Results: One of the most important challenges investigated was the limitation of rehabilitation comprehensive registration systems. Other challenges include the lack of support for ensuring the quality of registration data, insufficient funds for investment, privacy and data security, the unclear purpose of registration system development, access to hardware infrastructure, lack of binding laws and regulations related to registration systems, lack of access to sufficient information. To implement information registration systems, continuous monitoring and holding training courses.Conclusion: The most important challenge investigated was that currently the health care and rehabilitation registration systems around the world are focused on single diseases (single discipline rehabilitation), which does not meet the needs of patients due to the multifactorial nature of rehabilitation services and chronic diseases. Therefore, it seems that the connection between the data registration systems with the help of a comprehensive guideline or model or the creation of a national integrated central database in the form of integration with other health information systems and based on electronic health records will be very efficient.","PeriodicalId":154611,"journal":{"name":"Frontiers in Health Informatics","volume":"32 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2022-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Frontiers in Health Informatics","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.30699/fhi.v11i1.388","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 1
Abstract
Introduction: In recent decades, following the upward trend of aging, one out of three people in the world need rehabilitation services during the period of illness or injury. Considering the long-term complications and high costs of treatment, the need to follow up and review the evidence to find the best care programs and extensive planning in this field seems mandatory. Registry systems (registration) in this area can provide the necessary evidence for strategic decisions in this field. Of course, launching and developing these systems comes with challenges. Therefore, the purpose of this comprehensive literature review is to examine the challenges and benefits of developing a rehabilitation registration system.Materials and Method: A systematic review, in studies published in English, without time limit and by searching for keywords in the keywords, title and abstract of reliable scientific databases Web of Science, Scopus, PubMed and Science Direct, as well as searching the title of studies in the database Cochrane data was accessed on March 31, 2021. Studies that were a possible answer to the researched question based on the title and content were examined. A total of 1924 related studies were identified; And finally, 32 qualified articles were included in this review.Results: One of the most important challenges investigated was the limitation of rehabilitation comprehensive registration systems. Other challenges include the lack of support for ensuring the quality of registration data, insufficient funds for investment, privacy and data security, the unclear purpose of registration system development, access to hardware infrastructure, lack of binding laws and regulations related to registration systems, lack of access to sufficient information. To implement information registration systems, continuous monitoring and holding training courses.Conclusion: The most important challenge investigated was that currently the health care and rehabilitation registration systems around the world are focused on single diseases (single discipline rehabilitation), which does not meet the needs of patients due to the multifactorial nature of rehabilitation services and chronic diseases. Therefore, it seems that the connection between the data registration systems with the help of a comprehensive guideline or model or the creation of a national integrated central database in the form of integration with other health information systems and based on electronic health records will be very efficient.
引言:近几十年来,随着人口老龄化的上升趋势,世界上每三个人中就有一个人在患病或受伤期间需要康复服务。考虑到长期的并发症和高昂的治疗费用,需要跟进和审查证据,以找到最好的护理方案和广泛的规划,在这一领域似乎是必要的。该领域的注册系统(注册)可以为该领域的战略决策提供必要的证据。当然,发射和开发这些系统伴随着挑战。因此,本综合文献综述的目的是研究发展康复登记制度的挑战和好处。材料与方法:对发表于英文的研究进行系统综述,不受时间限制,通过在可靠的科学数据库Web of Science、Scopus、PubMed和Science Direct的关键词、标题和摘要中搜索关键词,以及在数据库中搜索研究标题,检索Cochrane数据,检索时间为2021年3月31日。根据标题和内容,对可能回答所研究问题的研究进行了检查。共确定了1924项相关研究;最终,32篇符合条件的文章被纳入本综述。结果:康复综合登记系统的局限性是调查中最重要的挑战之一。其他挑战包括缺乏对确保注册数据质量的支持、投资资金不足、隐私和数据安全、注册系统开发的目的不明确、硬件基础设施的获取、缺乏与注册系统相关的具有约束力的法律和法规、缺乏获得足够信息的途径。实施信息登记制度,持续监测和举办培训课程。结论:目前世界各国的卫生保健和康复登记制度主要集中于单一疾病(单一学科康复),由于康复服务和慢性病的多因素性质,不能满足患者的需求。因此,借助综合指南或模型将数据登记系统连接起来,或以与其他卫生信息系统集成的形式建立一个基于电子健康记录的国家综合中央数据库,似乎将非常有效。