C. Barnett, Fatmah Alzahmi, Dong Dong, Jeannine Heckman, V. Salutto, H. Shin
{"title":"Challenges managing myasthenia gravis: an international perspective","authors":"C. Barnett, Fatmah Alzahmi, Dong Dong, Jeannine Heckman, V. Salutto, H. Shin","doi":"10.17161/rrnmf.v4i3.19553","DOIUrl":null,"url":null,"abstract":"There have been increasing breakthroughs in the diagnosis and treatment of myasthenia gravis over the past decades. However, most published research in myasthenia is conducted in developed regions, such as the US, Canada and Europe. The challenges faced in these regions may be different from other areas of the world, often with fewer resources, such as fewer neurologists, limited or no access to specialised testing for myasthenia, and limited access to some interventions. During the 14th International Conference for Myasthenia Gravis and Myasthenic Disorders, we organized a panel of neurologists and researchers who work with people living with myasthenia in different world regions. The goal was to stimulate discussion around common challenges as well as those that are specific for given areas. Ultimately, we aimed to develop networks of clinicians caring for people living with myasthenia gravis around the world, to improve patient care. We present a summary of challenges using a case format by region, and a discussion around common threads and potential next steps.","PeriodicalId":309700,"journal":{"name":"RRNMF Neuromuscular Journal","volume":"46 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2023-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"RRNMF Neuromuscular Journal","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.17161/rrnmf.v4i3.19553","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
There have been increasing breakthroughs in the diagnosis and treatment of myasthenia gravis over the past decades. However, most published research in myasthenia is conducted in developed regions, such as the US, Canada and Europe. The challenges faced in these regions may be different from other areas of the world, often with fewer resources, such as fewer neurologists, limited or no access to specialised testing for myasthenia, and limited access to some interventions. During the 14th International Conference for Myasthenia Gravis and Myasthenic Disorders, we organized a panel of neurologists and researchers who work with people living with myasthenia in different world regions. The goal was to stimulate discussion around common challenges as well as those that are specific for given areas. Ultimately, we aimed to develop networks of clinicians caring for people living with myasthenia gravis around the world, to improve patient care. We present a summary of challenges using a case format by region, and a discussion around common threads and potential next steps.