Redressing the balance: Bruce Norval

S. Chaplin
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引用次数: 1

Abstract

M onday 24th September 2018 was the first day of the preliminary hearings of the UK Infected Blood Inquiry. Two earlier inquiries, dismissed as whitewashes, failed to provide answers and committed campaigners had now been rewarded. The Inquiry would examine the circumstances in which people under the care of the National Health Service (NHS) were given blood and blood products contaminated with HIV and hepatitis viruses, and possibly Creuzfeldt-Jakob disease (CJD); the impact on those infected and affected; the nature, adequacy and timeliness of the response from agencies involved; to what extent individuals may have been misled and denied treatment; and whether those agencies and individuals covered up the facts. The first three days were held in public, given over to opening statements that included witness accounts from people with haemophilia and their families. Their stories are profoundly moving. The Inquiry is truly an historic step towards accountability for the government, the NHS, health professionals and all involved in haemophilia care in the UK decades since 1970. The man who worked for many years to make this a reality is Bruce Norval. Bruce was born in Edinburgh in 1965. At age three he was admitted to hospital with bleeding from a fall; after three months on the ward, he was diagnosed with haemophilia B. It did not make much difference to him at the time.
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纠正平衡:布鲁斯·诺瓦尔
2018年9月24日星期一是英国感染血液调查初步听证会的第一天。早些时候的两次调查被认为是粉饰,未能提供答案,而坚定的活动家现在得到了奖励。调查将审查在何种情况下,国民保健服务(NHS)所照顾的人被给予受艾滋病毒和肝炎病毒污染的血液和血液制品,并可能感染克雅氏病(CJD);对受感染者和受影响者的影响;有关机构的反应的性质、充分性和及时性;个人可能在多大程度上被误导并被拒绝治疗;以及这些机构和个人是否掩盖了事实。前三天是公开举行的,开庭陈述包括血友病患者及其家属的证词。他们的故事非常感人。自1970年以来,英国政府、NHS、卫生专业人员和所有参与血友病治疗的人都向问责制迈出了历史性的一步。布鲁斯·诺瓦尔(Bruce Norval)为实现这一目标奋斗了多年。布鲁斯1965年出生于爱丁堡。三岁时,他因摔倒出血入院;在病房呆了三个月后,他被诊断出患有b型血友病。当时,这对他来说并没有多大影响。
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