On the local practice of narrative palliative care

Fei Li, X. Ning, Zhongxuan He, Jingwen Fang, Jianli Wang, Li-na Hou, Yuhong Jiang
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Abstract

Abstract Objectives In Mainland China, Hospice and Palliative Care are making significant progress; and meanwhile, Narrative Medicine is going through a process of localization in both theory and practice. Since the integration of the two areas in medicine, it is worth exploring practice on narrative palliative care more deeply. Methods Some of the authors have been collecting teaching cases in several cities by the research methods of anthropology (participant observation, in-depth interview and visual ethnography). Results Based on presenting a case and teaching feedback, this paper tries to show our effort in promoting and integrating Narrative Medicine education into the field of Palliative Care practice. And then we would try to explain it from two perspectives. Conclusions The work of education, research and clinical practice on narrative medicine in hospice and palliative care, can help us make sense of the end of life and especially help those medical students become capable of seeing the suffering around them in medical training.
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叙事性姑息治疗的地方实践
在中国大陆,临终关怀和姑息治疗正在取得显著进展;与此同时,叙事医学正在经历理论和实践的本土化过程。由于叙事与姑息治疗在医学上的融合,叙事姑息治疗的实践值得更深入的探索。方法采用人类学的研究方法(参与观察、深度访谈、视觉民族志)在多个城市收集教学案例。结果通过一个案例和教学反馈,展示了叙事医学教育在缓和医疗实践领域的推广和整合。然后我们会试着从两个角度来解释它。结论叙事医学在临终关怀和姑息治疗中的教育、研究和临床实践工作,可以帮助我们理解生命的终结,特别是帮助医学生在医学训练中能够看到身边的痛苦。
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