Parents' experiences of receiving their child's diagnosis of congenital heart disease: A systematic review and meta-synthesis of the qualitative literature

IF 3.5 2区心理学 Q1 PSYCHOLOGY, CLINICAL British Journal of Health Psychology Pub Date : 2023-11-15 DOI:10.1111/bjhp.12703

Shannon Dandy, Anja Wittkowski, Craig D. Murray

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Abstract

Purpose

This systematic review aimed to synthesize qualitative research on parents' psychological experiences following their child's diagnosis of congenital heart disease (CHD).

Methods

A systematic search of six electronic databases (CINAHL, Embase, MEDLINE, PsycINFO, PubMed and Web of Science) was completed, inclusive of all years up to May 2022. Any included articles were synthesized using thematic synthesis and appraised using the Critical Appraisal Skills Programme Qualitative Checklist.

Results

Twenty-six articles were included. Four main themes, and 11 subthemes, emerged from the synthesis. Theme 1 (unpreparedness for the diagnosis) concerned parents' shock, guilt and anger regarding the diagnosis. Theme 2 (the overwhelming reality of CHD) described parental fear about decision-making and the child's prognosis, and the influence of professionals on parents' well-being. Theme 3 (mourning multiple losses) detailed parents' sadness at losing their envisioned pregnancy, birth and parenthood experiences. Theme 4 (redefining hopes to reach an acceptance of CHD) described parents' adjustment to the diagnosis.

Conclusions

Receiving a child's CHD diagnosis was a uniquely challenging situation for parents. The findings provided insight into the emotions parents experienced and how they adjusted to the diagnosis psychologically. As parents' experiences were significantly influenced by their interactions with professionals, clinicians should offer compassion, validation and clear information throughout the diagnosis process.

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父母接受孩子先天性心脏病诊断的经历:定性文献的系统回顾和综合。

目的:本系统综述旨在综合定性研究儿童先天性心脏病(CHD)诊断后父母的心理体验。方法:系统检索截至2022年5月的6个电子数据库(CINAHL、Embase、MEDLINE、PsycINFO、PubMed和Web of Science)。所有纳入的文章均采用专题综合法进行综合，并使用《关键评价技能方案定性检查表》进行评价。结果:纳入26篇文献。从综合中产生了四个主要主题和11个次要主题。主题1(对诊断的不准备)涉及父母对诊断的震惊、内疚和愤怒。主题2(冠心病的压倒性现实)描述了父母对决策和孩子预后的恐惧，以及专业人士对父母幸福感的影响。主题3(哀悼多重损失)详细描述了父母在失去预期的怀孕、分娩和为人父母经历时的悲伤。主题4(重新定义希望达成对冠心病的接受)描述了父母对诊断的适应。结论:接受孩子的冠心病诊断对父母来说是一个独特的挑战。这些发现为了解父母的情绪体验以及他们如何在心理上适应诊断提供了见解。由于父母的经历受到他们与专业人员的互动的显著影响，临床医生应该在整个诊断过程中提供同情，验证和明确的信息。

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来源期刊

British Journal of Health Psychology PSYCHOLOGY, CLINICAL-

CiteScore

14.10

自引率

1.30%

发文量

期刊介绍： The focus of the British Journal of Health Psychology is to publish original research on various aspects of psychology that are related to health, health-related behavior, and illness throughout a person's life. The journal specifically seeks articles that are based on health psychology theory or discuss theoretical matters within the field.