Stories of Families with Chronically Ill Pediatric Patients during the War in Ukraine

Q4 Medicine Narrative inquiry in bioethics Pub Date : 2023-10-01 DOI:10.1353/nib.0.a911249
Vita Voloshchuk
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Abstract

 Healthcare Under Fire: Stories from Healthcare Workers During Armed Conflict 33 Adhering to professional and moral ethos during armed conflicts like the one in Ukraine can be challenging and demands a significant reorientation of personal and professional identity. The responsibility to provide each of their clients with as much support and emotional resources, without the ability for a referral or a treatment plan, is very difficult for those whose professional identity is about helping others, non-abandonment, restoration of mental health, and support their clients through the most challenging times of their lives. Furthermore, there is still much prejudice toward psychotherapy; many Ukrainian people worry about being stigmatized or called “crazy” if they see a psychotherapist. This attitude towards mental health changes, but the process is slow. Day in and day out, Ukrainian mental health clinicians witness the trauma of war, hear the stories filled with grief and desperation, and see the emotional aftermath and devastation the war has on people of all ages. The mental health clinicians work in environments that are not typical for therapy sessions; in hallways, in cramped offices with other therapists separated only by a thin fabric curtain to give some appearance of privacy. Despite all that, they continue to create space for hope and a future for those who felt they lost both. The Ukrainian mental health clinicians are soldiers fighting one of the most critical battles of our times, and they will win. B Stories of Families with Chronically Ill Pediatric Patients during the War in Ukraine Vita Voloshchuk F ebruary 24th was a day that has left a mark in the memory and on the lives of every Ukrainian person. My husband and I work together in a hospital. He had gone into work early to conduct a kidney transplant that had been scheduled for that day. Suddenly, whilst on my way to work that morning, I heard a strange sound—it was an air-raid siren. Before that, I had never heard such a sound. I went through all the possible options of what it could be. Of course, watching the morning news had never been a habit either. The next thing that astonished me was that the taxi I had ordered was taking an unnaturally long time to turn up. When I got into the taxi, I noticed that the taxi driver was really upset and silent for half of the journey. He then said, “A war has begun . . .” “War? So? The war has been going on since 2014.” “You don’t understand,” he said. “Russia is launching missile attacks all over the territory of Ukraine; Russian troops are coming from the east and north of Ukraine. They want to capture the capital of Ukraine.” (Kyiv). Arriving at the hospital, I saw confused faces everywhere. The morning meeting began with a discussion of how we were to act in any possible situation that may occur. We were to discharge patients from the hospital, as many as possible. The arrangement of a bomb shelter began (although I didn’t even think that such a thing existed in our hospital), along with the strengthening of the hospital ’s windows, and the increase of supplies such as medicine and food. Of course, the boy who expected a kidney transplant did not receive it because no one knew what to expect at any second or where a hostile Russian missile might hit, as Russian missiles hit not only military objects but residential buildings, hospitals, and memorials as well. Children who had to continue therapy remained in the hospital. As soon as we heard the sound of an air-raid siren, we had to go down into the bomb shelter. This happened 5-10 times per day. Families with palliative and chronically ill children began to call and ask for advice on how to proceed in such a situation. As many children were on artificial respiration devices, others needed oxygen therapy, and sputum of mucus from the upper respiratory tract. All this required uninterrupted power supplies and appropriate equipment. Later that day, a doctor from Poland called me and asked if our pediatric patients needed help, saying it would be better if they were moved...
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乌克兰战争期间患有慢性儿科病人的家庭故事
战火下的医疗保健:武装冲突期间医护人员的故事33在乌克兰这样的武装冲突中坚持职业和道德精神可能具有挑战性,需要对个人和职业身份进行重大的重新定位。对于那些以帮助他人、不被遗弃、恢复心理健康、支持客户度过生命中最具挑战性的时刻为职业身份的人来说,在没有转诊或治疗计划的情况下,为每个客户提供尽可能多的支持和情感资源的责任是非常困难的。此外,人们对心理治疗仍有很多偏见;许多乌克兰人担心,如果他们去看心理治疗师,会被污名化或被称为“疯子”。这种对待心理健康的态度有所改变,但过程缓慢。日复一日,乌克兰的心理健康临床医生目睹了战争的创伤,听到了充满悲伤和绝望的故事,看到了战争对所有年龄段的人造成的情感后果和破坏。心理健康临床医生在不典型的治疗环境中工作;在走廊里,在狭窄的办公室里,其他治疗师只被一层薄薄的织物窗帘隔开,以保持一些隐私。尽管如此,他们继续为那些感到失去了希望和未来的人创造希望和未来的空间。乌克兰的心理健康临床医生是在我们这个时代最关键的战斗中战斗的士兵,他们将取得胜利。2月24日是在每个乌克兰人的记忆和生活中留下印记的一天。我丈夫和我一起在医院工作。他很早就上班了,为当天安排的肾脏移植手术做准备。那天早上,在我上班的路上,我突然听到一个奇怪的声音——那是空袭警报器。在此之前,我从未听到过这样的声音。我考虑了所有可能的选择。当然,看早间新闻也从来不是一种习惯。第二件令我吃惊的事是,我叫的出租车过了很长时间才出现。当我上了出租车,我注意到出租车司机真的很沮丧,一半的旅程都沉默不语。他接着说:“一场战争已经开始……”“战争?所以呢?这场战争自2014年以来一直在进行。“你不明白,”他说。“俄罗斯在乌克兰全境发动导弹袭击;俄罗斯军队正从乌克兰东部和北部赶来。他们想占领乌克兰的首都。”(基辅)。到了医院,我看到到处都是困惑的面孔。上午的会议首先讨论了在任何可能发生的情况下我们该如何采取行动。我们要让尽可能多的病人出院。防空洞的布置开始了(虽然我甚至不认为我们医院有这种东西),同时医院的窗户也加强了,药品和食品等物资也增加了。当然,那个期待肾脏移植的男孩没有接受手术,因为没有人知道接下来会发生什么,也不知道敌对的俄罗斯导弹可能会击中哪里,因为俄罗斯的导弹不仅会袭击军事目标,还会袭击住宅楼、医院和纪念馆。必须继续接受治疗的儿童仍留在医院。我们一听到空袭警报器的声音,就必须立即进入防空洞。这种情况每天发生5-10次。患有姑息治疗和慢性疾病儿童的家庭开始打电话,询问在这种情况下如何进行。由于许多儿童使用人工呼吸设备,其他儿童需要吸氧治疗和上呼吸道粘液的痰液。所有这些都需要不间断的电力供应和适当的设备。那天晚些时候,一位来自波兰的医生打电话给我,问我们的儿科病人是否需要帮助,说如果他们被转移会更好……
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来源期刊
Narrative inquiry in bioethics
Narrative inquiry in bioethics Medicine-Medicine (all)
CiteScore
0.20
自引率
0.00%
发文量
27
期刊介绍: Narrative Inquiry in Bioethics (NIB) is a unique journal that provides a forum for exploring current issues in bioethics through personal stories, qualitative and mixed-methods research articles, and case studies. NIB is dedicated to fostering a deeper understanding of bioethical issues by publishing rich descriptions of complex human experiences written in the words of the person experiencing them. While NIB upholds appropriate standards for narrative inquiry and qualitative research, it seeks to publish articles that will appeal to a broad readership of healthcare providers and researchers, bioethicists, sociologists, policy makers, and others. Articles may address the experiences of patients, family members, and health care workers.
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