When Ethics Survives Where People Do Not: A Story From Darfur

Q4 Medicine Narrative inquiry in bioethics Pub Date : 2023-10-01 DOI:10.1353/nib.0.a911253
Ghaiath Hussein
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Abstract

 Healthcare Under Fire: Stories from Healthcare Workers During Armed Conflict 11 weredisrupted.Ahealthcaresystemwithoutpatients is like a cardiovascular system without blood. My family returned to Kyiv in August 2022 for our daughters to continue their schooling. There were (and still are) only five to seven kids in a class; other children left Ukraine or switched to online studies. My husband and I decided that our children will attend school offline—despite the regular missile attacks. This is a private school; we pay for it. In such a way, we want to support local businesses. Sending our kids to school every day (it takes 1.5 hours one way) and paying for their studies is a personal act of patriotism. We lived through a very challenging autumn and winter with regular blackouts, cold meals, stuck elevators, melted fridges, and uncharged smartphones and laptops. Sometimes we had no water or heat. We have learnt how terrifying and ghostly a three-million-person city looks when submerged in full darkness—with no traffic lights, glaring signboards, or luminous windows. I recollect that in November, I had a meeting with representatives from a large international charity foundation who were considering giving us a grant. The day before that meeting, Kyiv was subject to the most severe missile attack, and there was neither power, nor water, nor heating at my home. In the midst of our meeting—when I was being told that we had to introduce a more sophisticated bidding procedure and have bidders send their offers in sealed envelopes—I burst out crying. Their procedure mandates were so irrelevant! In my mind, I was seeking a solution to how my family would defecate and urinate in our apartment on the 13th floor with no power and water if the situation persisted.1 At that moment, I hated all international donors for being so absolutely out of touch with what Ukrainians were going through. Only the looming prospect of getting USD $342,000 for our assistance programs kept me at that meeting. 1 Incidentally, I found a solution to my challenge and will share it with you—this is a valuable piece of knowledge—not like that bull sheet about bidding procedures. You must buy plastic garbage bags and pet litter. And here you are! I am writing this piece at the end of May 2023. Almost every night in May, we had a missile and drone attack. It is a very bizarre feeling—in the daytime, the city looks perfectly peaceful, merry, sunlit, and busy: with kids, ice cream, scooters, blooming lilacs, and chestnut trees. At night, “the city falls asleep and the mafia gets up”. We are living two parallel lives—sunlit peaceful days and then the horror of nights full of air strike alarms, explosions, and flashes of downed missiles in the dark sky. Some people spend nights in the metro stations, sheltering their kids there. Others sleep in corridors or bathrooms where there are no windows . I opt to stay in bed and let my kids sleep. I do not want them to be traumatized—they still go to school, have picnics, and dream of roller skating with their friends over the weekend. They do not wake up at night or experience sleepless nights. I know that the cost of my attempts to preserve their childhood may be very high, but I persist. Why did we not leave the country? Finding a true answer in the entangled mix of rational and irrational considerations is difficult. First of all, I wanted to stay in Ukraine because while I am here, I can speak on behalf of Ukraine. I can be a witness. Second, I did not want to split the family—my husband is of draft age and cannot leave the country. Third, if everybody flees, who will our army fight for? I think that many families who left Ukraine will never come back. And this hurts me. We need young, ambitious, educated, open-minded, and creative people to rebuild the country. Our mission is not only to win the war but to make Ukraine better. B When Ethics Survives Where People Do Not: A Story From Darfur Ghaiath Hussein, MBBS, MSc...
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当道德在人类灭亡的地方幸存:一个来自达尔富尔的故事
战地医疗:武装冲突期间医护人员的故事被打断。没有病人的医疗保健系统就像没有血液的心血管系统。我的家人于2022年8月回到基辅,让我们的女儿们继续上学。一个班过去只有5到7个孩子(现在仍然如此);还有一些孩子离开了乌克兰,或者转向在线学习。我和丈夫决定让我们的孩子离线上学——尽管经常有导弹袭击。这是一所私立学校;我们为此付出了代价。通过这种方式,我们希望支持当地企业。每天送我们的孩子上学(单程需要1.5小时)并为他们支付学费是一种个人爱国主义行为。我们经历了一个非常有挑战性的秋冬,经常停电,饭菜冷,电梯卡住,冰箱融化,智能手机和笔记本电脑没有充电。有时我们没有水或暖气。我们已经了解到,一个拥有300万人口的城市在完全黑暗中——没有交通灯,没有耀眼的招牌,也没有发光的窗户——是多么可怕和幽灵。我记得在11月,我与一个大型国际慈善基金会的代表会面,他们正在考虑给我们一笔赠款。在那次会议的前一天,基辅遭受了最严重的导弹袭击,我家没有电,没有水,也没有暖气。在我们的会议中,当我被告知我们必须引入一个更复杂的竞标程序,并让竞标者用密封的信封发送报价时,我突然哭了起来。他们的程序规定是如此的不相干!在我的脑海里,我正在寻找一个解决方案,如果这种情况持续下去,我的家人在13楼的公寓里没有电和水,该如何排便和小便那一刻,我恨所有的国际捐助者完全不了解乌克兰人正在经历的事情。只是因为我们的援助项目即将获得34.2万美元的前景,我才参加了那次会议。顺便说一句,我找到了一个解决我的挑战的方法,并将与你分享——这是一个有价值的知识——不像那个关于招标程序的废话单。你必须买塑料垃圾袋和宠物砂。你来了!我在2023年5月底写这篇文章。五月的几乎每个晚上,我们都遭受导弹和无人机袭击。这是一种非常奇怪的感觉——在白天,这个城市看起来非常平静、快乐、阳光明媚、忙碌:孩子们、冰淇淋、摩托车、盛开的紫丁香和栗树。到了晚上,“城市睡着了,黑手党起来了”。我们过着两种平行的生活——阳光明媚的平静的白天,然后是充满空袭警报、爆炸和击落的导弹在黑暗天空中闪烁的恐怖夜晚。有些人在地铁站过夜,把孩子安置在那里。其他人睡在没有窗户的走廊或浴室里。我选择呆在床上,让我的孩子们睡觉。我不想让他们受到心理创伤——他们仍然去上学,去野餐,梦想着周末和朋友们一起滑旱冰。他们不会在晚上醒来,也不会经历不眠之夜。我知道我为保护他们的童年所付出的代价可能非常高昂,但我坚持不懈。我们为什么不离开这个国家?在理性和非理性考虑的纠缠中找到一个真正的答案是困难的。首先,我想留在乌克兰,因为当我在这里的时候,我可以代表乌克兰发言。我可以做目击证人。第二,我不想拆散家庭——我丈夫已到征兵年龄,不能离开这个国家。第三,如果大家都逃跑了,我们的军队为谁而战?我认为许多离开乌克兰的家庭再也不会回来了。这让我很伤心。我们需要年轻、有抱负、受过教育、思想开放和有创造力的人来重建国家。我们的使命不仅是赢得这场战争,还要让乌克兰变得更好。当道德在人不在的地方幸存:一个来自达尔富尔的故事
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来源期刊
Narrative inquiry in bioethics
Narrative inquiry in bioethics Medicine-Medicine (all)
CiteScore
0.20
自引率
0.00%
发文量
27
期刊介绍: Narrative Inquiry in Bioethics (NIB) is a unique journal that provides a forum for exploring current issues in bioethics through personal stories, qualitative and mixed-methods research articles, and case studies. NIB is dedicated to fostering a deeper understanding of bioethical issues by publishing rich descriptions of complex human experiences written in the words of the person experiencing them. While NIB upholds appropriate standards for narrative inquiry and qualitative research, it seeks to publish articles that will appeal to a broad readership of healthcare providers and researchers, bioethicists, sociologists, policy makers, and others. Articles may address the experiences of patients, family members, and health care workers.
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