Ethical Issues in Photovoice Studies involving Key Populations: A Scoping Review

IF 1.3 Q3 ETHICS Asian Bioethics Review Pub Date : 2023-11-13 DOI:10.1007/s41649-023-00264-3

Chong Guan Ng, Sing Qin Ting, Rumana Akhter Saifi, Adeeba Bt Kamarulzaman

{"title":"Ethical Issues in Photovoice Studies involving Key Populations: A Scoping Review","authors":"Chong Guan Ng, Sing Qin Ting, Rumana Akhter Saifi, Adeeba Bt Kamarulzaman","doi":"10.1007/s41649-023-00264-3","DOIUrl":null,"url":null,"abstract":"<div><p>Photovoice, a community-based participatory research method, employs images and words to convey participants' needs, concerns, and desires. It proves particularly valuable in researching marginalized communities who face elevated health risks, disease transmission, and social and health disparities. This paper seeks to investigate the ethical considerations inherent in photovoice research projects. We conducted an extensive literature review spanning four databases to identify pertinent photovoice studies. Ethical issues from the selected articles were identified, categorized, and summarized. Our analysis of twenty-five photovoice studies uncovered various ethical concerns, which had been grouped into informed consent, participant safety and disclosure, privacy and confidentiality, misrepresentation, power dynamics, and compensation. In essence, our findings underscore the importance of addressing these ethical concerns to uphold the rights and autonomy of participants, even as photovoice research strives for authenticity, inclusivity, and empowerment.</p></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":"16 1","pages":"109 - 129"},"PeriodicalIF":1.3000,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00264-3.pdf","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Asian Bioethics Review","FirstCategoryId":"1085","ListUrlMain":"https://link.springer.com/article/10.1007/s41649-023-00264-3","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"ETHICS","Score":null,"Total":0}

引用次数: 0

Abstract

Photovoice, a community-based participatory research method, employs images and words to convey participants' needs, concerns, and desires. It proves particularly valuable in researching marginalized communities who face elevated health risks, disease transmission, and social and health disparities. This paper seeks to investigate the ethical considerations inherent in photovoice research projects. We conducted an extensive literature review spanning four databases to identify pertinent photovoice studies. Ethical issues from the selected articles were identified, categorized, and summarized. Our analysis of twenty-five photovoice studies uncovered various ethical concerns, which had been grouped into informed consent, participant safety and disclosure, privacy and confidentiality, misrepresentation, power dynamics, and compensation. In essence, our findings underscore the importance of addressing these ethical concerns to uphold the rights and autonomy of participants, even as photovoice research strives for authenticity, inclusivity, and empowerment.

查看原文

微信好友朋友圈 QQ好友复制链接

本刊更多论文

涉及关键人群的摄影选择研究中的伦理问题：范围审查

摄影声音是一种基于社区的参与式研究方法，它利用图像和文字来表达参与者的需求、关注和愿望。事实证明，这种方法在研究面临高健康风险、疾病传播以及社会和健康差异的边缘化社区时尤其有价值。本文旨在探讨摄影选言研究项目中固有的伦理考虑因素。我们对四个数据库进行了广泛的文献综述，以确定相关的摄影选择研究。我们对所选文章中的伦理问题进行了识别、分类和总结。我们对 25 篇摄影选择研究进行了分析，发现了各种伦理问题，并将其归纳为知情同意、参与者安全与披露、隐私与保密、失实陈述、权力动态和补偿。从本质上讲，我们的研究结果强调了解决这些伦理问题的重要性，以维护参与者的权利和自主权，即使摄影选择研究努力追求真实性、包容性和赋权。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文去求助

来源期刊

Asian Bioethics Review Multiple-

CiteScore

6.20

自引率

3.40%

发文量

期刊介绍： Asian Bioethics Review (ABR) is an international academic journal, based in Asia, providing a forum to express and exchange original ideas on all aspects of bioethics, especially those relevant to the region. Published quarterly, the journal seeks to promote collaborative research among scholars in Asia or with an interest in Asia, as well as multi-cultural and multi-disciplinary bioethical studies more generally. It will appeal to all working on bioethical issues in biomedicine, healthcare, caregiving and patient support, genetics, law and governance, health systems and policy, science studies and research. ABR provides analyses, perspectives and insights into new approaches in bioethics, recent changes in biomedical law and policy, developments in capacity building and professional training, and voices or essays from a student’s perspective. The journal includes articles, research studies, target articles, case evaluations and commentaries. It also publishes book reviews and correspondence to the editor. ABR welcomes original papers from all countries, particularly those that relate to Asia. ABR is the flagship publication of the Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore. The Centre for Biomedical Ethics is a collaborating centre on bioethics of the World Health Organization.