AN INVESTIGATION OF THE RELATIONSHIP BETWEEN THE QUALITY OF LIFE OF THE CHILD PATIENT AND THE PARENT AFTER DESMOPRESSIN TREATMENT IN CHILDREN WITH PRIMARY NOCTURNAL ENURESIS

Sagir Suleyman
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Abstract

Our study aimed to assess the quality of life of both children with monosymptomatic enuresis and their parents during the enuresis period and through the process of cessation with desmopressin treatment. Materials and methods: The study assessed 78 children aged 6-18 with Monosymptomatic Nocturnal Enuresis (MEN) treated with desmopressin. Comprehensive evaluations, including physical exams and lab tests, were conducted. The surveys on the impact of enuresis on daily life and emotional well-being were evaluated. Results: The study observed 78 patients, averaging 10.6 years old, primarily treated for urinary incontinence with desmopressin. Patient demographics indicated 68% had education below high school, 74% were Turkish, and 26% Syrian. Familial data revealed an average of 3.87 siblings per patient. Key findings included a significant reduction in the number of incontinence days per week post-treatment (from 5.09 days to 2.59 days). Quality of Life (QOL) scores for both patients and parents showed significant improvement after treatment. The mean QOL for patients increased from 20 to 26.8, while for parents, it rose from 13 to 24.6. Overall, desmopressin demonstrated a positive impact on urinary incontinence and the associated quality of life. Conclusions: With treatment, there is a noticeable improvement in psychological, social, and emotional aspects among children with MEN and their parents. Therefore, it is essential to treat children experiencing MEN.
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原发性夜间遗尿症患儿去氨加压素治疗后患儿与家长生活质量关系的研究
我们的研究旨在评估单症状性遗尿症患儿及其父母在遗尿期间以及在去氨加压素治疗停止过程中的生活质量。材料和方法:研究评估了78例6-18岁单症状性夜间遗尿症(MEN)患儿,采用去氨加压素治疗。进行了全面评价,包括体格检查和实验室化验。评估遗尿对日常生活和情绪健康的影响。结果:该研究观察了78例患者,平均年龄10.6岁,主要用去氨加压素治疗尿失禁。患者人口统计数据显示,68%的人受教育程度低于高中,74%是土耳其人,26%是叙利亚人。家族性数据显示,每位患者平均有3.87个兄弟姐妹。主要发现包括治疗后每周尿失禁天数显著减少(从5.09天减少到2.59天)。治疗后患者及家长的生活质量(QOL)均有显著改善。患者的平均生活质量从20提高到26.8,而家长的平均生活质量从13提高到24.6。总的来说,去氨加压素对尿失禁和相关的生活质量有积极的影响。结论:经治疗,MEN患儿及其父母在心理、社会和情感方面均有显著改善。因此,治疗经历男性行为的儿童是必要的。
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