Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution?

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES Journal of Patient-Centered Research and Reviews Pub Date : 2023-11-27 eCollection Date: 2023-01-01 DOI:10.17294/2330-0698.2017
Leif I Solberg, Jeanette Y Ziegenfuss, Rachael L Rivard, Christine K Norton, Robin R Whitebird, Glyn Elwyn, Marc Swiontkowski
{"title":"Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution?","authors":"Leif I Solberg, Jeanette Y Ziegenfuss, Rachael L Rivard, Christine K Norton, Robin R Whitebird, Glyn Elwyn, Marc Swiontkowski","doi":"10.17294/2330-0698.2017","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>The study aim was to test the feasibility of collecting qualitative patient-preferred outcomes or goals and the degree of their attainment as an addition to a standardized process for collecting quantitative composite patient-reported outcome measures (PROMs) from patients undergoing knee joint replacement.</p><p><strong>Methods: </strong>Patients of a large Midwestern medical group scheduled to have total replacement of their knee joint have been asked to complete a PROMs survey preoperatively and at 3 and 12 months after surgery since 2014. In March 2020, an open-ended question about their most important preferred outcome was added to the existing questionnaire. The responses for all 3 time periods from the first 6 months of this addition were summarized quantitatively and analyzed by 2 reviewers.</p><p><strong>Results: </strong>During that 6-month period, 1481 people completed the main survey while 1463 (98.8%) also completed the open-ended question. At baseline, 90.8% of the 590 baseline respondents identified a preferred outcome. If multiple-choice categories had been used, 82.7% of the responses would have lost some or a large amount of their preferred goals' meaning. Of the 144 who completed surveys at both baseline and 3 months, 86.1% reported another outcome in addition to pain relief, while 54.2% reported \"Complete or Mostly\" achieving their self-identified preferred outcome.</p><p><strong>Conclusions: </strong>Most people who have joint replacement surgery and respond to a quantitative PROMs survey are willing to report on their other preferred outcomes as well. Adding an open-ended question to PROMs surveys may increase clinician focus on addressing outcomes important to each patient.</p>","PeriodicalId":16724,"journal":{"name":"Journal of Patient-Centered Research and Reviews","volume":null,"pages":null},"PeriodicalIF":1.6000,"publicationDate":"2023-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10688914/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Patient-Centered Research and Reviews","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.17294/2330-0698.2017","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/1/1 0:00:00","PubModel":"eCollection","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0

Abstract

Purpose: The study aim was to test the feasibility of collecting qualitative patient-preferred outcomes or goals and the degree of their attainment as an addition to a standardized process for collecting quantitative composite patient-reported outcome measures (PROMs) from patients undergoing knee joint replacement.

Methods: Patients of a large Midwestern medical group scheduled to have total replacement of their knee joint have been asked to complete a PROMs survey preoperatively and at 3 and 12 months after surgery since 2014. In March 2020, an open-ended question about their most important preferred outcome was added to the existing questionnaire. The responses for all 3 time periods from the first 6 months of this addition were summarized quantitatively and analyzed by 2 reviewers.

Results: During that 6-month period, 1481 people completed the main survey while 1463 (98.8%) also completed the open-ended question. At baseline, 90.8% of the 590 baseline respondents identified a preferred outcome. If multiple-choice categories had been used, 82.7% of the responses would have lost some or a large amount of their preferred goals' meaning. Of the 144 who completed surveys at both baseline and 3 months, 86.1% reported another outcome in addition to pain relief, while 54.2% reported "Complete or Mostly" achieving their self-identified preferred outcome.

Conclusions: Most people who have joint replacement surgery and respond to a quantitative PROMs survey are willing to report on their other preferred outcomes as well. Adding an open-ended question to PROMs surveys may increase clinician focus on addressing outcomes important to each patient.

查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
在患者报告的结果测量革命中,是否存在患者个人指定偏好的空间?
目的:本研究的目的是测试收集定性患者首选结果或目标及其达到程度的可行性,作为收集膝关节置换术患者定量复合报告结果测量(PROMs)的标准化过程的补充。方法:自2014年起,对美国中西部某大型医疗集团计划进行膝关节全置换术的患者进行术前、术后3个月和12个月的PROMs调查。2020年3月,在现有的问卷中增加了一个关于他们最重要的首选结果的开放式问题。从这一增加的前6个月开始的所有3个时间段的反应由2名评论者进行了定量总结和分析。结果:在这6个月的时间里,1481人完成了主要调查,1463人(98.8%)完成了开放式问题。在基线时,590名基线应答者中有90.8%确定了首选结果。如果使用多项选择类别,82.7%的回答会失去部分或大量的首选目标的含义。在144名完成基线和3个月调查的患者中,86.1%的人报告了除疼痛缓解外的其他结果,而54.2%的人报告“完全或大部分”达到了他们自我确定的首选结果。结论:大多数接受关节置换手术并对定量PROMs调查做出反应的人也愿意报告他们的其他首选结果。在PROMs调查中增加开放式问题可能会增加临床医生对每个患者重要结果的关注。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
Journal of Patient-Centered Research and Reviews
Journal of Patient-Centered Research and Reviews HEALTH CARE SCIENCES & SERVICES-
自引率
5.90%
发文量
35
审稿时长
20 weeks
期刊最新文献
"It Is What It Is" - The Lived Experience of Women With Breast Cancer Undergoing Axillary Lymph Node Dissection. "Ups and Downs, Joys and Sorrows" - Assessment and Clinical Relevance of Patient Priorities in an Interdisciplinary Parkinson's Disease Clinic. Assessing the Climate Readiness of Physician Education Leaders in Graduate Medical Education. Determining the Prognostic Value of Complete Blood Count Subgroup Parameters in Staphylococcus aureus Bacteremia. Factors Influencing Self-Wound Care Adoption in Singaporean Communities: A Cross-Sectional Survey.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1