Research ACCORDing to whom? Developing a South Australian Aboriginal and Torres Strait Islander Health Research Accord

Kim Morey (Anmatyerre & Eastern Arrernte) , Christine Franks (Yuin) , Odette Pearson (Kuku Yalanji & Torres Strait Islander) , Karen Glover (Mein:tnk & Wotjobaluk) , Alex Brown (Yuin)
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Abstract

Documents regarding ethical research conduct are available to guide researchers in the field of Aboriginal and Torres Strait Islander (Aboriginal) health, yet their implementation lacks consistency within and between research institutions. South Australia has taken a conscious approach to implement locally appropriate ethical practice in Aboriginal health research by developing a South Australian Aboriginal Health Research Accord (Accord).

The Accord was developed through an iterative mixed-methods approach, involving a literature review, stakeholder consultations and consensus-building process. The Accord comprises nine key principles that guide Aboriginal health research in South Australia: priorities, involvement, partnership, respect, communication, reciprocity, ownership, control, and knowledge translation and exchange. Each principle is presented with a summary explanation and description of its application in research practice. The Accord aims to guide researchers, universities, research institutes, consultants, governments and service providers in the appropriate processes required when developing and conducting health research with Aboriginal people in South Australia and can serve as a guide for ethics committees. It provides a voice for Aboriginal communities to inform researchers on how they would like health research to be conducted in their communities. Consistently applying the nine principles of the Accord will increase the impact and benefit of health research for Aboriginal people in Australia.

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研究根据谁?制定《南澳大利亚土著和托雷斯海峡岛民健康研究协定》
关于伦理研究行为的文件可用于指导土著和托雷斯海峡岛民(土著)健康领域的研究人员,但这些文件的执行在研究机构内部和机构之间缺乏一致性。南澳大利亚通过制定《南澳大利亚土著健康研究协定》,有意识地在土著健康研究中实施适合当地的伦理做法。该协议是通过一种迭代的混合方法制定的,涉及文献审查、利益攸关方磋商和建立共识进程。该协议包括指导南澳大利亚土著健康研究的九项关键原则:优先事项、参与、伙伴关系、尊重、沟通、互惠、所有权、控制以及知识转化和交流。每个原则都有一个总结的解释和描述其在研究实践中的应用。该协议旨在指导研究人员、大学、研究机构、顾问、政府和服务提供者在与南澳大利亚土著人民开展和开展健康研究时所需的适当程序,并可作为伦理委员会的指南。它为土著社区提供了一个声音,告知研究人员他们希望如何在他们的社区进行健康研究。一贯执行《协定》的九项原则将增加保健研究对澳大利亚土著人民的影响和益处。
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