Child bereavement—what matters to the families. Part 1: Immediate and short-term communication and care

Shona Elizabeth Johnston, Suzanne McAllister, Catriona Norden, Keta Keens, Katharine Jones, Gillian Smith, Rebecca Duncombe, Laura Barnett, Amy Krepska
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Abstract

The death of a child is a complex and hugely significant time for a family and community. Sophisticated but sensitive management by clinicians can have both short-term and long-term impacts on how families process the death. There is a paucity of guidance for optimal child bereavement care. A description of the child death review process including key legalities is provided here, and other essential aspects such as memory making, cultural aspects and sibling involvement are explored. Useful agencies and resources are also detailed. We, as both clinicians and bereaved parents, can uniquely provide an overview of the logistics of managing such a challenging event and highlight important subtleties in communication. We attempt, using our own experiences, to provide a framework and best inform future practice.
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儿童丧亲之痛--对家庭的影响。第 1 部分:即时和短期沟通与关怀
对于一个家庭和社区来说,儿童死亡是一个复杂而又意义重大的时刻。临床医生复杂而敏感的处理方式会对家庭如何处理死亡产生短期和长期的影响。目前还缺乏有关儿童丧亲护理最佳方法的指导。本文介绍了儿童死亡审查程序,包括关键的法律问题,并探讨了其他重要方面,如记忆的形成、文化方面和兄弟姐妹的参与。此外,还详细介绍了有用的机构和资源。我们既是临床医生,也是失去亲人的父母,因此能够以独特的方式概述处理此类具有挑战性事件的后勤工作,并强调沟通中的重要微妙之处。我们试图用自己的经验提供一个框架,并为未来的实践提供最佳参考。
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