Harvey and Gurvir’s Law: The Need for Accurate Information Balanced Against Avoiding Unnecessary Restrictions on Autonomous Decision Making

Louise P. King
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Abstract

Decision making during reproduction is complex for a variety of medical and social reasons. Anyone who has had a conversation with a family member about the “best time” to have a baby can attest to this — there is no “best time” or “best way.” Multiple pressures from any number of sources combine in a minefield of hazards made ever more complicated by restrictive laws in the US. Add to this a screening result of potential chromosomal aneuploidy and decision making becomes ever more complex. Societal stigma and lack of adequate and accurate information during counseling certainly plays a role in the high number of terminations in the setting of diagnosed chromosomal aneuploidy, yet other factors also push families in this direction including medical considerations and the abysmal lack of social support programs.

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哈维和古尔维尔定律:准确信息的需求与避免对自主决策的不必要限制之间的平衡
由于各种医疗和社会原因,生育期间的决策是复杂的。任何与家庭成员谈论过生孩子的“最佳时间”的人都可以证明这一点——没有“最佳时间”或“最佳方式”。来自任何来源的多重压力在危险的雷区中结合在一起,美国的限制性法律使其变得更加复杂。再加上潜在的染色体非整倍体的筛选结果,决策变得更加复杂。在诊断为染色体非整倍体的情况下,社会的耻辱感和在咨询过程中缺乏足够和准确的信息无疑是导致大量终止妊娠的原因之一,然而,其他因素也将家庭推向这个方向,包括医疗方面的考虑和严重缺乏社会支持计划。
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