Testimonies and experiences of patients awaiting transplant and transplanted patients in Italy: a survey aiming to understand their needs.

IF 1.1 4区医学 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Annali dell'Istituto superiore di sanita Pub Date : 2023-10-01 DOI:10.4415/ANN_23_04_08

Lia Bellis, Francesca Puoti, Alessia Troni, Valentina Caramia, Lucia Masiero, Silvia Pisanu, Salvatore Agrimano, Massimo Cardillo

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Abstract

Introduction and methods: In 2020 the Italian National Transplant Centre (Centro Nazionale Trapianti, Istituto Superiore di Sanità, Rome, Italy) launched two online surveys to explore waitlisted and transplanted patients' needs.

Results: The analysis of two-year results shows prevailing feelings of anxiety and discouragement (44.5%) in waitlisted patients. A mere 19.7% expresses feelings of trust and hope. Conversely, in transplanted patients, gratitude (65.7%) predominates. Both transplanted (53.5%) and waitlisted patients (41.5%) worry about organ rejection and complications, SARS-CoV-2 pandemic was an additional concern. The latter report certainty of transplant as their main need (81.3%), followed by psychological support (41.8%) also indicated by 27.9% of transplanted patients, while donor-recipient anonymity is an issue for 31.3% of the transplanted.

Conclusion: Focusing on the needs and, above all, taking them on, means putting the patient at the centre of care and increasing the chances of a better life despite sufferings and preoccupations.

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意大利等待移植和已移植病人的证词和经历：旨在了解其需求的调查。

简介和方法：2020年，意大利国家移植中心（Centro Nazionale Trapianti, Istituto Superiore di Sanità, Rome, Italy）发起了两项在线调查，以了解候补患者和移植患者的需求：对两年调查结果的分析表明，候补患者普遍感到焦虑和沮丧（44.5%）。仅有 19.7% 的人表示信任和希望。相反，在移植患者中，感激之情（65.7%）占主导地位。接受移植的病人（53.5%）和候补病人（41.5%）都担心器官排斥和并发症，SARS-CoV-2 大流行也是他们担心的问题之一。后者表示，确定移植是他们的主要需求（81.3%），其次是心理支持（41.8%），27.9%的移植患者也表示了这一点，而31.3%的移植患者则对捐献者和受捐者的匿名问题感到担忧：结论：关注患者的需求，尤其是满足他们的需求，意味着将患者置于护理工作的中心，增加患者在痛苦和焦虑中获得更好生活的机会。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Annali dell'Istituto superiore di sanita PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-

CiteScore

3.80

自引率

4.80%

发文量

审稿时长

>12 weeks

期刊介绍： Annali dell’Istituto Superiore di Sanità is a peer reviewed quarterly science journal which publishes research articles in biomedicine, translational research and in many other disciplines of the health sciences. The journal includes the following material: original articles, reviews, commentaries, editorials, brief and technical notes, book reviews. The publication of Monographic Sections has been discontinued. In case you wish to present a small number of coordinated contributions on specific themes concerning priorities in public health, please contact the Editorial office. The journal is in English.