The "3 Ps" of EmPowerment, Partnership and Protection - Stakeholder Perceptions of Beneficial Outcomes of Engagement in HIV Prevention Trials.

IF 1.7 4区 哲学 Q2 ETHICS Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2023-12-17 DOI:10.1177/15562646231221259
Abigail Wilkinson, Siyabonga Thabethe, Jessica Salzwedel, Catherine Slack
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Abstract

Background: Stakeholder engagement is increasingly recognized as a key component of ethical research in leading ethics guidelines. Ethics commentators have also argued that engagement has several beneficial outcomes for the field. Aim: This paper reports on the beneficial outcomes of stakeholder engagement in HIV prevention trials as perceived by stakeholders in the field. Method: We conducted 28 interviews between 2019 and 2021 with interviewees from various stakeholder groups in 12 countries and used thematic analysis to analyze the transcripts. Findings: We found three major themes - namely emPowerment where engagement is perceived to empower stakeholders, Partnerships where engagement is perceived to build equitable relationships and Protections where engagement is perceived to strengthen protections for participants and community stakeholders and to improve science. Conclusions: These findings map closely onto beneficial outcomes envisaged by ethics guidelines, however, the relationship between outcomes seen as beneficial deserves further exploration.

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EmPowerment、Partnership 和 Protection 这 "3P"--利益相关者对参与艾滋病预防试验的有益结果的看法。
背景:利益相关者的参与日益被公认为主要伦理指南中伦理研究的关键组成部分。伦理评论家也认为,利益相关者的参与可为该领域带来一些有益的结果。目的:本文报告了该领域利益相关者认为利益相关者参与艾滋病预防试验的有益结果。方法:我们在 2019 年至 2021 年期间对来自 12 个国家不同利益相关者群体的受访者进行了 28 次访谈,并采用主题分析法对访谈记录进行了分析。研究结果我们发现了三大主题,即 "赋权"(emPowerment),即参与可增强利益相关者的能力;"合作"(Partnerships),即参与可建立公平的关系;"保护"(Protections),即参与可加强对参与者和社区利益相关者的保护并提高科学水平。结论:这些发现与伦理准则所设想的有益结果密切相关,但是,被视为有益的结果之间的关系值得进一步探讨。
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来源期刊
CiteScore
3.50
自引率
7.70%
发文量
30
审稿时长
>12 weeks
期刊介绍: The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.
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