What Matters Most: The Documented Goals, Values and Motivators of Advanced Cancer Patients.

Ashley Aller, Aida Shirazi, Leon Pedell, Andrea Altschuler, Karen Hauser, Megan Cheslock, Jenny Wei, Ali Duffens, Hannah Whitehead, Peggy Lim, Jed Katzel, Francisco Martinez, Amy Lin, Steve Aller, Cynthia Aller, Tyler Jones, Sue May Yen, Raymond Liu
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Abstract

Background: Goals of care conversations are essential to delivery of goal concordant care. Infrequent and inconsistent goals of care documentation potentially limit delivery of goal concordant care.

Methods: At Kaiser Permanente San Francisco Cancer Center, a standardized documentation template was designed and implemented to increase goals of care documentation by oncologists. The centralized, prompt-based template included value clarification of the goals and values of advanced cancer patients beyond treatment preferences. Documented conversations using the template during the initial pilot period were reviewed to characterization the clinical context in which conversations were recorded. Common goals and motivators were also identified.

Results: A total of 178 advanced cancer patients had at least 1 documented conversation by a medical oncologist using the goals of care template. Oncologists consistently documented within the template goals of therapy and motivating factors in decision making. The most frequently documented goals of care were "Avoiding Pain and Suffering," "Physical Independence," and "Living as Long as Possible." The least recorded goal was "Comfort Focused Treatment Only."

Conclusions: Review of oncologist documented goals of care conversations using a prompt-based template allowed for characterization of the clinical context, therapy goals and motivators of advanced cancer patients. Communication of goals of care conversations by oncologists using a standardized prompt-based template within a centralized location has the potential to improve delivery of goal concordant care.

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什么最重要?记录晚期癌症患者的目标、价值观和动机。
背景:护理目标对话对于提供目标一致的护理至关重要。护理目标记录的不频繁和不一致可能会限制目标一致护理的提供:方法:旧金山凯泽医疗集团癌症中心(Kaiser Permanente San Francisco Cancer Center)设计并实施了一个标准化文档模板,以增加肿瘤科医生的护理目标文档。这个集中式、基于提示的模板包括对晚期癌症患者治疗偏好之外的目标和价值观的澄清。对最初试点期间使用该模板记录的对话进行了审查,以确定记录对话的临床背景。同时还确定了共同的目标和动机:共有 178 名晚期癌症患者接受了肿瘤内科医生使用护理目标模板进行的至少一次有记录的谈话。肿瘤学家在模板中一致记录了治疗目标和决策激励因素。记录最多的治疗目标是 "避免疼痛和痛苦"、"身体独立 "和 "尽可能长寿"。记录最少的目标是 "仅以舒适为重点的治疗":使用基于提示的模板对肿瘤学家记录的护理目标对话进行审查,可以了解晚期癌症患者的临床背景、治疗目标和动机。肿瘤学家使用基于提示的标准化模板在集中地点进行护理目标对话交流,有望改善目标一致的护理服务。
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