Living with chronic obstructive pulmonary disease or type 2 diabetes in Greenland - a qualitative interpretive description study.

IF 1.3 4区 医学 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH International Journal of Circumpolar Health Pub Date : 2024-12-01 Epub Date: 2023-12-21 DOI:10.1080/22423982.2023.2296706
Maja Hykkelbjerg Nielsen, Annesofie Lunde Jensen, Michael Lynge Pedersen, Lene Seibæk
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Abstract

Non-communicable diseases such as chronic obstructive pulmonary disease (COPD) and type 2 diabetes mellitus (T2D) represent major challenges for health systems all over the world. In an interview study, we explored patient experiences and perspectives of being diagnosed and living with COPD or T2D in Greenland. Participants (n = 24) were selected by purposeful sampling and recruited by phone. We conducted individual semi-structured interviews at the National Hospital in Nuuk and the four regional hospitals. Interviews were audio-recorded, transcribed verbatim, and analysed using interpretive description. Three themes emerged: shock and shame on receiving the diagnosis, coping with a changed life, and varying needs for care and communication. We found that being diagnosed with COPD or T2D required a rapid change in the participants' everyday lives and lifestyle behaviours. Some self-managed their disease well and were able to transfer their knowledge and integrate it into their daily lives, while others struggled to make lifestyle changes. Additionally, living with COPD or T2D could be related to silence and shame. The findings contribute to a better understanding of living with COPD or T2D in the Arctic region and the development of future, culturally-adapted patient education initiatives.

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格陵兰慢性阻塞性肺病或 2 型糖尿病患者的生活--定性解释性描述研究。
慢性阻塞性肺病(COPD)和 2 型糖尿病(T2D)等非传染性疾病是全世界卫生系统面临的主要挑战。在一项访谈研究中,我们探讨了格陵兰患者被诊断出患有慢性阻塞性肺病或 T2D 并在其中生活的经历和观点。参与者(n = 24)是通过有目的的抽样和电话招募选出的。我们在努克国立医院和四家地区医院进行了个人半结构化访谈。我们对访谈进行了录音、逐字记录,并使用解释性描述法进行了分析。访谈中出现了三个主题:接受诊断时的震惊和羞愧、应对生活的改变以及对护理和沟通的不同需求。我们发现,被诊断出患有慢性阻塞性肺病或肺结核后,参与者的日常生活和生活行为需要迅速改变。有些人能够很好地自我管理疾病,并将所学知识融入日常生活,而有些人则在改变生活方式方面举步维艰。此外,患有慢性阻塞性肺病或肺结核可能与沉默和羞耻感有关。这些研究结果有助于更好地了解北极地区慢性阻塞性肺病或肺结核患者的生活状况,并有助于未来制定适应当地文化的患者教育计划。
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来源期刊
International Journal of Circumpolar Health
International Journal of Circumpolar Health 医学-公共卫生、环境卫生与职业卫生
CiteScore
2.10
自引率
15.40%
发文量
51
审稿时长
6-12 weeks
期刊介绍: The International Journal of Circumpolar Health is published by Taylor & Francis on behalf of the Circumpolar Health Research Network [CircHNet]. The journal follows the tradition initiated by its predecessor, Arctic Medical Research. The journal specializes in circumpolar health. It provides a forum for many disciplines, including the biomedical sciences, social sciences, and humanities as they relate to human health in high latitude environments. The journal has a particular interest in the health of indigenous peoples. It is a vehicle for dissemination and exchange of knowledge among researchers, policy makers, practitioners, and those they serve. International Journal of Circumpolar Health welcomes Original Research Articles, Review Articles, Short Communications, Book Reviews, Dissertation Summaries, History and Biography, Clinical Case Reports, Public Health Practice, Conference and Workshop Reports, and Letters to the Editor.
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