[How Successful is the Participation of People with Mental Illness and Family Members in the Development of Evidence- and Consensus-Based Clinical Practice Guidelines? Results of a Survey in Psychiatry].

IF 1.1 4区医学 Q4 PSYCHIATRY Psychiatrische Praxis Pub Date : 2024-05-01 Epub Date: 2023-12-22 DOI:10.1055/a-2201-7987

Katja Schladitz, Elena Caroline Weitzel, Margrit Löbner, Bettina Soltmann, Frank Jessen, Jochen Schmitt, Andrea Pfennig, Steffi G Riedel-Heller, Uta Gühne

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Abstract

Objective: The study examines how successful the participation of people with mental illness and family members is currently in the development of psychiatric guidelines.

Methods: Survey results of N=561 (Response 37%) guideline developers are analyzed.

Results: Involvement of affected individuals succeeds more often than that of family members (61% vs. 55%). 68% felt that this participation was central to successful guideline development. 51% perceived discrepancies between empirical evidence and experience perspective. 33-36% perceived a lack of appreciation of experience expertise, 37% an insufficient representation and 46% an inequality in consensus building. 45% did not see barriers effectively removed.

Conclusion: There remain challenges in the participation of people with mental illness and family members. There is an increasing awareness that their participation is central.

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[精神疾病患者及其家人参与制定以证据和共识为基础的临床实践指南的成功率如何？精神病学调查的结果]。

研究目的本研究探讨了目前精神疾病患者及其家庭成员参与精神疾病指南制定的成功程度：方法：对 N=561（回复率 37%）份指南制定者的调查结果进行分析：结果：受影响者的参与比家庭成员的参与更成功（61% 对 55%）。68%的人认为这种参与是成功制定指南的关键。51%的人认为经验证据和经验观点之间存在差异。33%-36%的人认为缺乏对经验专长的重视，37%的人认为代表性不足，46%的人认为在达成共识方面存在不平等。45%的人认为障碍没有得到有效消除：结论：精神病患者及其家人的参与仍然面临挑战。人们越来越意识到他们的参与是至关重要的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Psychiatrische Praxis PSYCHIATRY-

CiteScore

3.90

自引率

9.10%

发文量

103

期刊介绍： Sozialpsychiatrisch orientiert Aktuelle Originalarbeiten und fundierte Übersichten Pro-Kontra-Debatten zu Brennpunktthemen Informative Fallbeispiele Vorstellung internationaler Studien