Parent experiences of specific learning disorder diagnosis: A scoping review

IF 1.9 3区 教育学 Q1 EDUCATION, SPECIAL Dyslexia Pub Date : 2024-01-04 DOI:10.1002/dys.1757
Hayley Anthony, Andrea Reupert, Louise McLean
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Abstract

The purpose of this review was to scope the quantity and methodological characteristics of the current literature examining parent and caregivers' perspectives of specific learning disorder (SLD) diagnosis, synthesise key findings and highlight gaps in the current literature. A systematic search was conducted for the period January 2013 to March 2023. Twenty-three articles, representing 1796 parents and caregivers across seven countries, underwent data extraction. The review highlighted considerable variability regarding the main aim and scope of each included study and that most studies used qualitative or mixed method methodology. Three central parts of the diagnostic experience were identified: pathway to assessment, assessment process, and advocating and coordinating support post-diagnosis. A final theme, broader social and political issues, was also identified. The findings highlight that parents of children with SLDs experienced a similar battle to obtain a diagnosis and access post-diagnostic support as parents of children with other neurodevelopmental disorders. This provides some evidence that, internationally, parent needs in the time surrounding SLD diagnostic assessment are not being met, with substantial barriers to timely assessment and inadequate post-diagnosis support. Future research and implications for practice are explored.

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特殊学习障碍诊断的家长经验:范围审查。
本综述的目的是对当前研究家长和照顾者对特殊学习障碍(SLD)诊断的看法的文献的数量和方法特点进行概括,对主要研究结果进行综合,并强调当前文献中的不足之处。我们对 2013 年 1 月至 2023 年 3 月期间的文献进行了系统检索。对代表七个国家 1796 名家长和看护人的 23 篇文章进行了数据提取。综述强调了每项纳入研究的主要目的和范围存在相当大的差异,而且大多数研究都采用了定性或混合方法。研究确定了诊断经验的三个核心部分:评估途径、评估过程以及诊断后的宣传和协调支持。最后一个主题是更广泛的社会和政治问题。研究结果突出表明,与其他神经发育障碍儿童的家长一样,患有特殊学习障碍儿童的家长在获得诊断和诊断后支持方面也经历了类似的斗争。这提供了一些证据,表明在国际范围内,家长在进行 SLD 诊断评估期间的需求没有得到满足,及时评估面临巨大障碍,诊断后支持不足。本文探讨了未来的研究和对实践的影响。
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来源期刊
Dyslexia
Dyslexia Multiple-
CiteScore
3.90
自引率
9.10%
发文量
27
期刊介绍: DYSLEXIA provides reviews and reports of research, assessment and intervention practice. In many fields of enquiry theoretical advances often occur in response to practical needs; and a central aim of the journal is to bring together researchers and practitioners in the field of dyslexia, so that each can learn from the other. Interesting developments, both theoretical and practical, are being reported in many different countries: DYSLEXIA is a forum in which a knowledge of these developments can be shared by readers in all parts of the world. The scope of the journal includes relevant aspects of Cognitive, Educational, Developmental and Clinical Psychology Child and Adult Special Education and Remedial Education Therapy and Counselling Neuroscience, Psychiatry and General Medicine The scope of the journal includes relevant aspects of: - Cognitive, Educational, Developmental and Clinical Psychology - Child and Adult Special Education and Remedial Education - Therapy and Counselling - Neuroscience, Psychiatry and General Medicine
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