Experiences of disabled children’s families concerning school-family collaboration

Athena Zoniou-Sideri, Eudoxia Nteropoulou-Nterou
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Abstract

The role of families in the education of disabled children is one of the prominent factors influencing their educational course. Parents’ aspirations for their children, their expectations and their experiences are determinant factors in the education of their disabled children. In the Greek context the role of familial environment appears reinforced since historically the majority of society has considered education as an individual responsibility of families. The scope of this study is the exploration of the experiences of a group of disabled children’s parents concerning school-family collaboration in relation to the functioning of the special educational structures following discourse analysis approach. The exploration of the experiences of disabled children’s families took place using semi-structured interviews. The analysis of parent’s experiences follows the social model of disability, which is contrasted with the clinical model and the theory of personal tragedy. The discourse analysis approach reveals a growing number of incidents concerning the feeling of personal tragedy. The experience of personal tragedy appears more often at the level of collaboration with structures and professionals from the educational context, projecting the individual model approach of disability at the level of school-family collaboration.
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残疾儿童家庭在学校与家庭合作方面的经验
家庭在残疾儿童教育中的作用是影响其教育过程的重要因素之一。父母对子女的愿望、期望和经验是残疾儿童教育的决定性因素。在希腊,家庭环境的作用似乎得到了加强,因为历史上大多数社会都认为教育是家庭的个人责任。本研究采用话语分析方法,探讨了一组残疾儿童家长在特殊教育机构运作方面与学校和家庭合作的经验。对残疾儿童家庭经验的探索采用了半结构化访谈的方式。对家长经历的分析遵循了残疾的社会模式,并与临床模式和个人悲剧理论进行了对比。话语分析方法揭示了越来越多与个人悲剧感有关的事件。个人悲剧的经历更多出现在与教育机构和专业人员合作的层面上,从而将残疾的个人模式方法投射到学校-家庭合作的层面上。
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