Poster (Clinical/Best Practice Implementation) ID 1985364

IF 2.4 Q1 REHABILITATION Topics in Spinal Cord Injury Rehabilitation Pub Date : 2023-09-01 DOI:10.46292/sci23-1985364s
Triti Khorasheh, Lucie Langford, Mariza Croosfernando, Dawn Richards, B. C. Craven
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Abstract

The engagement of people with lived experience (PLEX) of spinal cord injury/disease (SCI/D) in rehabilitation research can lead to relevant questions and improved data collection, interpretation, knowledge translation, and research impact. We describe the process to create a toolkit which elaborates the roles that PLEX can play in rehabilitation research to ensure engagement is authentic and effective. Five separate working groups were convened to each focus on a specific role of PLEX: research team member, peer reviewer, knowledge translator, decision-maker, and fundraising ambassador. The roles of PLEX in research, relevant training tools, and indicators to measure engagement were explored through 17 virtual meetings with 45 scientists, research staff, learners, and PLEX. Menti-meter and Survey Monkey were used to select training tools via consensus. A summative meeting was held with all participants to achieve consensus regarding the role descriptions. Meeting transcripts and survey data informed iterations of the materials prior to achieving consensus. The Toolkit contains five role descriptions for PLEX as well as example activities, training requirements for scientists and PLEX, and specific indicators for each role. The Toolkit includes several best practice considerations and three practical tools for researchers to plan engagement, facilitate compensation, and implement/evaluate engagement. The Toolkit can be used by researchers and research organizations to develop, implement, and evaluate engagement plans with PLEX in SCI/D rehabilitation research. This Toolkit can be used to transform the SCI/D rehabilitation research and advocacy agenda, and contribute to more relevant research with a greater impact.
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海报(临床/最佳实践实施) ID 1985364
让脊髓损伤/疾病(SCI/D)的亲身经历者(PLEX)参与康复研究可以提出相关问题,改善数据收集、解释、知识转化和研究影响。我们介绍了创建工具包的过程,该工具包阐述了 PLEX 在康复研究中可以发挥的作用,以确保参与的真实性和有效性。 我们召集了五个独立的工作组,每个工作组关注 PLEX 的特定角色:研究团队成员、同行评审员、知识翻译、决策者和筹款大使。通过与 45 名科学家、研究人员、学习者和 PLEX 举行 17 次虚拟会议,探讨了 PLEX 在研究中的角色、相关培训工具以及衡量参与度的指标。通过协商一致,使用 Menti-meter 和 Survey Monkey 选择了培训工具。与所有与会者举行了一次总结会议,就角色描述达成共识。在达成共识之前,会议记录和调查数据为材料的反复修改提供了依据。 该工具包包含 PLEX 的五种角色描述、示例活动、对科学家和 PLEX 的培训要求以及每种角色的具体指标。该工具包还包括若干最佳实践注意事项和三个实用工具,供研究人员规划参与、促进补偿和实施/评估参与。 研究人员和研究机构可利用该工具包制定、实施和评估 SCI/D 康复研究中的 PLEX 参与计划。该工具包可用于改变 SCI/D 康复研究和宣传议程,并有助于开展更具影响力的相关研究。
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来源期刊
CiteScore
3.20
自引率
3.40%
发文量
33
期刊介绍: Now in our 22nd year as the leading interdisciplinary journal of SCI rehabilitation techniques and care. TSCIR is peer-reviewed, practical, and features one key topic per issue. Published topics include: mobility, sexuality, genitourinary, functional assessment, skin care, psychosocial, high tetraplegia, physical activity, pediatric, FES, sci/tbi, electronic medicine, orthotics, secondary conditions, research, aging, legal issues, women & sci, pain, environmental effects, life care planning
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