Navigating the COVID-19 pandemic: Experiences and self-management approaches adopted by people with interstitial lung disease.

IF 3.5 3区医学 Q2 RESPIRATORY SYSTEM Chronic Respiratory Disease Pub Date : 2024-01-01 DOI:10.1177/14799731231226236

Gabriella Tikellis, Tamera Corte, Ian N Glaspole, Nicole S L Goh, Yet H Khor, Jeremy Wrobel, Karen Symons, Lisa Fuhrmeister, Laura Glenn, Shiji Chirayath, Lauren K Troy, Bill King, Anne E Holland

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Abstract

Background: People with interstitial lung disease (ILD) were deemed more vulnerable to the SARS-CoV-2 virus and isolated as a means of reducing risk of infection. This study examined the impact of the pandemic on daily life, psychological wellbeing and access to healthcare and identified approaches undertaken to remain safe.

Methods: Four specialist clinics in tertiary centres in Australia (Victoria: two sites; New South Wales: one site; Western Australia: one site) recruited patients with ILD during an 8-week period from March 2021. Semi-structured telephone interviews were conducted with transcripts analysed using principles of grounded theory.

Results: Ninety participants were interviewed between April and December 2021. Participants were predominantly female, former smokers with an average age of 66 years. IPF and connective tissue-ILD being the most common subtypes. Five main themes were identified: vulnerability reduced social interaction and isolation, access to healthcare services and support, staying active, emotional and psychological impact. Self-management strategies included staying active both physically and mentally.

Discussion: Self-management was key to managing the impact of the pandemic. In combination with advances in technology, implementation of strategies for monitoring wellbeing and support for self-management provides an opportunity to leverage the lessons learnt to ensure a more individualised model of care for people with ILD.

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COVID-19大流行的导航：间质性肺病患者的经历和自我管理方法。

背景：人们认为患有间质性肺病（ILD）的人更容易感染 SARS-CoV-2 病毒，并将其隔离以降低感染风险。本研究探讨了这一流行病对日常生活、心理健康和获得医疗保健的影响，并确定了为保持安全而采取的方法：澳大利亚三级中心的四家专科诊所（维多利亚州：两家；新南威尔士州：一家；西澳大利亚州：一家）在 2021 年 3 月起的 8 周内招募了 ILD 患者。研究人员进行了半结构化电话访谈，并采用基础理论的原则对访谈记录进行了分析：在 2021 年 4 月至 12 月期间，共对 90 名参与者进行了访谈。参与者主要为女性，曾经吸烟，平均年龄为 66 岁。IPF和结缔组织-ILD是最常见的亚型。研究确定了五大主题：脆弱性、社会交往减少和孤立、获得医疗服务和支持、保持活跃、情绪和心理影响。自我管理策略包括保持身心活跃：讨论：自我管理是控制大流行病影响的关键。结合技术进步，实施监测健康状况和支持自我管理的策略为利用所学到的经验教训确保为 ILD 患者提供更加个性化的护理模式提供了机会。

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来源期刊

Chronic Respiratory Disease RESPIRATORY SYSTEM-

CiteScore

5.90

自引率

7.30%

发文量

审稿时长

11 weeks

期刊介绍： Chronic Respiratory Disease is a peer-reviewed, open access, scholarly journal, created in response to the rising incidence of chronic respiratory diseases worldwide. It publishes high quality research papers and original articles that have immediate relevance to clinical practice and its multi-disciplinary perspective reflects the nature of modern treatment. The journal provides a high quality, multi-disciplinary focus for the publication of original papers, reviews and commentary in the broad area of chronic respiratory disease, particularly its treatment and management.