Body integrity dysphoria and moral responsibility: an interpretation of the scepticism regarding on-demand amputations.

IF 1.2 3区 社会学 0 HUMANITIES, MULTIDISCIPLINARY Medical Humanities Pub Date : 2024-09-23 DOI:10.1136/medhum-2023-012811
Leandro Loriga
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Abstract

A patient who requests an amputation deemed medically unnecessary by professionals is disqualified per se from being regarded as having medical decision-making capacity. This decision is based on the assumption that there is an option to pursue something other than amputation; such an assumption in many cases overflows into therapeutic obstinacy. This is the case for individuals who have ill or damaged body parts and who wish to avoid recurrent and painful medical treatment designed to save the limb, as well as for individuals affected by body integrity dysphoria (BID). BID is a condition that is recognised by the WHO and is included in the International Classification of Diseases, 11th edition. Individuals who are affected develop an intense feeling of overcompleteness of their body configuration, which leads to the development of a strong sense of dysphoria and consequently the desire to amputate in order to remove the source of such discomfort. In the few cases in which amputation has been carried out, the results have proved successful; the individual's quality of life has improved and they have had no new amputation desires. No medical therapy, including medical amputation, is available currently for individuals affected by the condition. This situation leads many with BID to mutilate themselves. Such events create a challenging ethical dilemma for the medical world.The present paper is focused on the capacity of the individual with BID to do other than request amputation and the implications that this carries regarding moral responsibility. It is proposed that the autonomy of the patient cannot be disqualified by default based on the amputation request, despite its oddity, and that any scepticism demonstrated by the physicians is based on a false preconception of ill will or ignorance, which results in a blaming attitude towards the requesting person.

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身体完整性障碍与道德责任:对按需截肢怀疑论的解读。
如果病人要求截肢,而专业人员认为在医学上没有必要,那么病人本身就不具备医疗决策能力。这种决定是基于这样一种假设,即除了截肢之外,还有其他选择;这种假设在许多情况下会变成治疗上的顽固不化。对于那些肢体患病或受损、希望避免为挽救肢体而反复进行痛苦治疗的人,以及受肢体完整性障碍(BID)影响的人来说,情况就是如此。肢体完整性障碍是世界卫生组织认可的一种疾病,已被列入《国际疾病分类》第 11 版。患者会强烈地感觉到自己的身体构造过于完整,从而产生强烈的不适感,进而产生截肢的愿望,以消除这种不适感的根源。在少数实施截肢的病例中,结果证明是成功的;患者的生活质量得到了改善,而且他们没有新的截肢愿望。目前还没有包括截肢在内的医学疗法可用于受此疾病影响的个人。这种情况导致许多 BID 患者自残。本文的重点是研究 BID 患者除要求截肢外的其他行为能力及其对道德责任的影响。本文提出,尽管截肢请求很奇怪,但不能因此默认病人的自主权被剥夺,医生表现出的任何怀疑态度都是基于一种错误的先入为主的恶意或无知,这导致了对请求者的责备态度。
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来源期刊
Medical Humanities
Medical Humanities HUMANITIES, MULTIDISCIPLINARY-
CiteScore
2.60
自引率
8.30%
发文量
59
期刊介绍: Occupational and Environmental Medicine (OEM) is an international peer reviewed journal concerned with areas of current importance in occupational medicine and environmental health issues throughout the world. Original contributions include epidemiological, physiological and psychological studies of occupational and environmental health hazards as well as toxicological studies of materials posing human health risks. A CPD/CME series aims to help visitors in continuing their professional development. A World at Work series describes workplace hazards and protetctive measures in different workplaces worldwide. A correspondence section provides a forum for debate and notification of preliminary findings.
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