U.S. public perceptions of the sensitivity of brain data.

IF 2.5 2区 哲学 Q1 ETHICS Journal of Law and the Biosciences Pub Date : 2024-01-18 eCollection Date: 2024-01-01 DOI:10.1093/jlb/lsad032
Shenyang Huang, Umika Paul, Shikhar Gupta, Karen Desai, Melinda Guo, Jennifer Jung, Beatrice Capestany, William D Krenzer, Dylan Stonecipher, Nita Farahany
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Abstract

As we approach an era of potentially widespread consumer neurotechnology, scholars and organizations worldwide have started to raise concerns about the data privacy issues these devices will present. Notably absent in these discussions is empirical evidence about how the public perceives that same information. This article presents the results of a nationwide survey on public perceptions of brain data, to inform discussions of law and policy regarding brain data governance. The survey reveals that the public may perceive certain brain data as less sensitive than other 'private' information, like social security numbers, but more sensitive than some 'public' information, like media preferences. The findings also reveal that not all inferences about mental experiences may be perceived as equally sensitive, and perhaps not all data should be treated alike in ethical and policy discussions. An enhanced understanding of public perceptions of brain data could advance the development of ethical and legal norms concerning consumer neurotechnology.

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美国公众对大脑数据敏感性的看法。
随着消费神经技术时代的到来,全球的学者和组织都开始关注这些设备将带来的数据隐私问题。值得注意的是,在这些讨论中缺乏有关公众如何看待这些信息的实证证据。本文介绍了一项关于公众对大脑数据看法的全国性调查结果,为有关大脑数据管理的法律和政策讨论提供参考。调查显示,公众可能认为某些脑数据的敏感性低于其他 "私人 "信息,如社会安全号码,但高于某些 "公共 "信息,如媒体偏好。调查结果还显示,并非所有关于心理体验的推断都被视为同样敏感,也许在伦理和政策讨论中,并非所有数据都应一视同仁。进一步了解公众对大脑数据的看法,可以促进有关消费神经技术的伦理和法律规范的发展。
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来源期刊
Journal of Law and the Biosciences
Journal of Law and the Biosciences Medicine-Medicine (miscellaneous)
CiteScore
7.40
自引率
5.90%
发文量
35
审稿时长
13 weeks
期刊介绍: The Journal of Law and the Biosciences (JLB) is the first fully Open Access peer-reviewed legal journal focused on the advances at the intersection of law and the biosciences. A co-venture between Duke University, Harvard University Law School, and Stanford University, and published by Oxford University Press, this open access, online, and interdisciplinary academic journal publishes cutting-edge scholarship in this important new field. The Journal contains original and response articles, essays, and commentaries on a wide range of topics, including bioethics, neuroethics, genetics, reproductive technologies, stem cells, enhancement, patent law, and food and drug regulation. JLB is published as one volume with three issues per year with new articles posted online on an ongoing basis.
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