The Impact of a Physiotherapy Tele-Rehabilitation Program on the Quality of Care for Children with Juvenile Idiopathic Arthritis.

Q4 Medicine Mediterranean Journal of Rheumatology Pub Date : 2023-08-31 eCollection Date: 2023-12-01 DOI:10.31138/mjr.310823.tio
Maria Stavrakidou, Maria Trachana, Artemis Koutsonikoli, Kyriaki Spanidou, Alexandra Hristara-Papadopoulou
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Abstract

Objectives: To investigate the applicability and impact of a physiotherapy tele-rehabilitation program (TRP) on children with Juvenile Idiopathic Arthritis (JIA) and their families.

Methods: Thirty JIA patients, applying an individualized home-exercise program (HEP), were randomly divided in the tele-rehabilitation (TRG, n=15) and control group (CG, n=15). Each TRG patient participated in a 30-minute tele-session, under a paediatric physiotherapist's supervision, twice a week, for 12 weeks. Before and after the TRP (T1 and T2, respectively), all participants and a parent/guardian completed the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) questionnaire and a questionnaire regarding the HEP implementation and compliance. Residual disease was estimated at T1 and T2. At T2, TRG patients/parents completed a questionnaire evaluating the TRP. One month after T2, a reassessment of compliance with the HEP was performed.

Results: The patients' median age was 12.8 (8-16) years. At T2, the TRG patients performed the HEP significantly more frequently (p=0.023), for a longer time (p=0.034) and with less urging (p=0.004), compared to T1. Moreover, they exhibited significantly increased compliance with HEP (p=0.001), better functionality (p=0.008), better quality of life (p=0.007) and less pain (p=0.017). The CG patients showed no significant changes. Residual disease improved in both groups (TRG:p=0.002, CG:p=0.018), but more in the TRG (p=0.045). TRP's applicability and total benefit were rated as excellent by patients/parents. Finally, one month after T2, compliance with the HEP was still greater than at T1(p=0.001).

Conclusion: An interactive physiotherapy TRP can be implemented effectively for JIA patients, providing an additional tool for their rehabilitation.

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物理治疗远程康复计划对青少年特发性关节炎患儿护理质量的影响。
目的研究物理治疗远程康复计划(TRP)对青少年特发性关节炎(JIA)患儿及其家庭的适用性和影响:30名JIA患者采用个性化家庭锻炼计划(HEP),随机分为远程康复组(TRG,15人)和对照组(CG,15人)。在儿科物理治疗师的指导下,每名 TRG 患者参加一次 30 分钟的远程治疗,每周两次,持续 12 周。在TRP之前和之后(分别为T1和T2),所有参与者和一名家长/监护人填写了青少年关节炎多维评估报告(JAMAR)问卷以及一份关于HEP实施情况和依从性的问卷。在T1和T2时对残余疾病进行了估计。在第二阶段,TRG 患者/家长填写了一份评估 TRP 的问卷。T2结束一个月后,对HEP的依从性进行重新评估:结果:患者的中位年龄为 12.8(8-16)岁。与 T1 相比,TRG 患者在 T2 进行 HEP 的频率明显增加(p=0.023),时间明显延长(p=0.034),催促次数明显减少(p=0.004)。此外,他们对 HEP 的依从性(p=0.001)、功能性(p=0.008)、生活质量(p=0.007)和疼痛感(p=0.017)都明显提高。CG患者则无明显变化。两组患者的残余疾病均有所改善(TRG:p=0.002,CG:p=0.018),但TRG患者的改善更大(p=0.045)。患者/家长对 TRP 的适用性和总体疗效给予了极高的评价。最后,T2期一个月后,患者对HEP的依从性仍高于T1期(p=0.001):结论:交互式物理治疗 TRP 可以有效地用于 JIA 患者,为他们的康复提供额外的工具。
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CiteScore
2.00
自引率
0.00%
发文量
42
审稿时长
8 weeks
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