John J. Mitchell, M. Inbar‐Feigenberg, Kim Angel, Pranesh Chakraborty, M. Lamoureux, John Adams, Beth K. Potter, Sylvia Stockler-Ipsirolgu, Alison H. Howie, Alex Pace, Nancy J. Butcher, Cheryl R. Greenberg, Robin Hayeems, A. Laberge, Jeff Round, Martin Offringa, Maryam Oskoui, Chelsea Ruth, Andreas Schulze, Kathy Speechley, K. Thavorn, Y. Trakadis, Kumanan Wilson, Thierry Lacaze
{"title":"Co-developing The Canadian MPS Registry: A longitudinal rare disease patient registry","authors":"John J. Mitchell, M. Inbar‐Feigenberg, Kim Angel, Pranesh Chakraborty, M. Lamoureux, John Adams, Beth K. Potter, Sylvia Stockler-Ipsirolgu, Alison H. Howie, Alex Pace, Nancy J. Butcher, Cheryl R. Greenberg, Robin Hayeems, A. Laberge, Jeff Round, Martin Offringa, Maryam Oskoui, Chelsea Ruth, Andreas Schulze, Kathy Speechley, K. Thavorn, Y. Trakadis, Kumanan Wilson, Thierry Lacaze","doi":"10.1016/j.ymgme.2023.107964","DOIUrl":null,"url":null,"abstract":"","PeriodicalId":504050,"journal":{"name":"Molecular Genetics and Metabolism","volume":"277 ","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Molecular Genetics and Metabolism","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1016/j.ymgme.2023.107964","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
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