Transporting and implementing a caregiver-mediated intervention for toddlers with autism in Goa, India: evidence from the social ABCs

Jessica A. Brian, Erin Dowds, Kate Bernardi, Andre Velho, Mahera Kantawalla, Nandita de Souza
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Abstract

Autism is a global health priority with an urgent need for evidence-based, resource-efficient, scalable supports that are feasible for implementation in low- and middle-income countries (LMICs). Initiating supports in the toddler years has potential to significantly impact child and family outcomes. The current paper describes the feasibility and outcomes associated with a Canadian-developed caregiver-mediated intervention for toddlers (the Social ABCs), delivered through a clinical service in Goa, India.Clinical staff at the Sethu Centre for Child Development and Family Guidance in Goa, India, were trained by the Canadian program development team and delivered the program to families seen through their clinic. Using a retrospective chart review, we gathered information about participating families and used a pre-post design to examine change over time.Sixty-four families were enrolled (toddler mean age = 28.5 months; range: 19–35), of whom 55 (85.94%) completed the program. Video-coded data revealed that parents learned the strategies (implementation fidelity increased from M = 45.42% to 76.77%, p < .001, with over 90% of caregivers attaining at least 70% fidelity). Toddler responsivity to their caregivers (M = 7.00% vs. 46.58%) and initiations per minute (M = 1.16 vs. 3.49) increased significantly, p's < .001. Parents also reported significant improvements in child behaviour/skills (p < .001), and a non-significant trend toward reduced parenting stress (p = .056).Findings corroborate the emerging evidence supporting the use of caregiver-mediated models in LMICs, adding evidence that such supports can be provided in the very early years (i.e., under three years of age) when learning may be optimized.
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在印度果阿,为患有自闭症的幼儿运送和实施以护理人员为媒介的干预措施:来自社交 ABC 的证据
自闭症是全球健康领域的一个优先事项,中低收入国家(LMICs)迫切需要以证据为基础、节约资源、可扩展的支持措施。在幼儿期启动支持措施有可能对儿童和家庭的结果产生重大影响。本文介绍了加拿大开发的以照顾者为媒介的幼儿干预措施(社交 ABCs)的可行性和相关结果,该干预措施是通过印度果阿的一项临床服务实施的。印度果阿 Sethu 儿童发展和家庭指导中心的临床工作人员接受了加拿大项目开发团队的培训,并通过诊所向就诊家庭提供该项目。通过回顾性病历审查,我们收集了参与家庭的信息,并采用事前事后设计的方法来研究随着时间推移而发生的变化。64个家庭(幼儿平均年龄=28.5个月;范围:19-35)参加了该项目,其中55个家庭(85.94%)完成了项目。视频编码数据显示,家长们学会了这些策略(实施忠实度从 M = 45.42% 提高到 76.77%,p < .001,90% 以上的照顾者达到至少 70% 的忠实度)。幼儿对看护人的反应能力(M = 7.00% 对 46.58%)和每分钟的主动性(M = 1.16 对 3.49)显著提高,p < .001。研究结果证实了支持在低收入和中等收入国家使用以照顾者为媒介的模式的新证据,并增加了在幼儿期(即三岁以下)提供此类支持的证据,因为在这个时期学习效果可能会最佳。
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