Navigating the complex care landscape: Addressing challenges and advancing adult care frameworks for individuals with cerebral palsy

Jensine’ Clark , Cristina Sarmiento , Jessica Sanders , Lauren Wang , Lauren Fetsko , Unoma Akamagwuna
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Abstract

Despite cerebral palsy (CP) being the most common motor disability in childhood, there are more adults living with CP than children. The necessitates a systematic approach to the care of adults with CP. This perspective piece presents the complex nature of a lifespan approach to the care of a childhood-onset disability. We share the multidisciplinary considerations from a primary care model to address chronic health conditions and preventive care. We also present a care model with an emphasis on Neurology and Neurodevelopmental Disability with its implications for adults with CP. Finally, we advocate for a care model that encompasses a biopsychosocial approach to treatments and interventions with essential elements that include the adult perspective.

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驾驭复杂的护理环境:应对挑战并推进针对脑瘫患者的成人护理框架
尽管脑性瘫痪(CP)是儿童时期最常见的运动障碍,但患有脑性瘫痪的成年人却多于儿童。因此,有必要对成年 CP 患者采取系统的护理方法。这篇视角独特的文章介绍了以生命周期方法护理儿童期发病残疾的复杂性。我们分享了从初级保健模式出发的多学科考虑因素,以解决慢性健康状况和预防保健问题。我们还介绍了以神经病学和神经发育障碍为重点的护理模式及其对成年 CP 患者的影响。最后,我们提倡一种包含生物心理社会方法的护理模式,这种方法的治疗和干预的基本要素包括成人视角。
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