Patient-journey of fibromyalgia patients: A scoping review

Reumatologia clinica Pub Date : 2024-02-01 DOI:10.1016/j.reumae.2023.07.005

Teresa Otón , Loreto Carmona , Javier Rivera

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Abstract

Background

Fibromyalgia (FM) is a chronic disease characterized by widespread pain. Although much is known about this disease, research has focused on diagnosis and treatment, leaving aside factors related to patient's experience and the relationship with healthcare system.

Objectives

The aim was to analyze the available evidence on the experience of FM patients from the first symptoms to diagnosis, treatment, and follow-up.

Methods

A scoping review was carried out. Medline and the Cochrane Library were searched for original studies or reviews dealing with FM and focusing on “patient journey”. Results were organized using a deductive classification of themes.

Results

Fifty-four articles were included in the qualitative synthesis. Five themes were identified: the patient journey, the challenge for the health systems, a complex doctor–patient relationship, the importance of the diagnosis, and the difficulty of standardizing the treatment.

Conclusions

This scoping review confirms the negative impact of FM on the patient, their social environment, and health systems. It is necessary to minimize the difficulties encountered throughout the diagnosis and follow-up of patients with FM.

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纤维肌痛患者的病程：范围综述

背景纤维肌痛（FM）是一种以广泛性疼痛为特征的慢性疾病。尽管人们对这种疾病有很多了解，但研究主要集中在诊断和治疗方面，而忽略了与患者经历以及与医疗系统的关系有关的因素。方法进行了范围界定综述。在 Medline 和 Cochrane 图书馆中搜索了与 FM 相关并关注 "患者历程 "的原始研究或综述。结果54篇文章被纳入定性综述。确定了五个主题：患者历程、医疗系统面临的挑战、复杂的医患关系、诊断的重要性以及标准化治疗的困难。有必要尽量减少在诊断和随访调频患者过程中遇到的困难。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Reumatologia clinica

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