Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver Narratives.

IF 1.1 4区医学 Q2 Dentistry Cleft Palate-Craniofacial Journal Pub Date : 2024-02-23 DOI:10.1177/10556656241233115

Raed Alrubaiaan, Bhavana Nair, Fatemeh Amir-Rad, May Aljanahi, Vijay Kumar S, Sabarinath Prasad

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Abstract

Objective: Information regarding how caregivers cope when using presurgical infant orthopedic (PSIO) appliances is sparse. This study aimed to understand caregivers' perspectives and experiences with contemporary PSIO treatment.

Design: PSIO videos shared on the YouTube™ platform were used as the data source. Videos with caregivers were identified (n = 21) and portions with caregiver narratives were transcribed. This was followed by the application of a six-step thematic analysis as conceptualized by Braun and Clarke (2006, 2019).

Results: Two themes were identified from the caregiver narratives in the PSIO videos. The Family Journey theme included reaction to diagnosis, choice of center, burden of care, care commitment, coping, and testimonials. The Information theme included PSIO techniques and PSIO benefits.

Conclusion: Multifaceted challenges and coping strategies were described by caregivers during the PSIO phase. Caregivers remained committed to treatment despite the burden of care, were motivated by an understanding of the benefits of PSIO, and customized care based on their individual strengths and needs. Study results can help providers gain an understanding of what caregivers experience outside the clinical environment.

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YouTube™ 上的婴儿矫形手术前视频：护理人员叙述的专题分析。

目的：有关护理人员在使用婴儿术前矫形器（PSIO）时如何应对的信息很少。本研究旨在了解护理人员对当代 PSIO 治疗的看法和经验：设计：将 YouTube™ 平台上分享的 PSIO 视频作为数据源。确定了有护理人员参与的视频（n = 21），并转录了有护理人员叙述的部分。随后，按照 Braun 和 Clarke（2006 年，2019 年）的概念，采用六步主题分析法进行分析：从 PSIO 视频中的照护者叙述中确定了两个主题。家庭旅程主题包括对诊断的反应、中心的选择、护理负担、护理承诺、应对和见证。信息主题包括 PSIO 技术和 PSIO 好处：结论：在 PSIO 阶段，护理人员描述了多方面的挑战和应对策略。尽管护理负担沉重，但护理人员仍然坚持治疗，他们了解 PSIO 的益处，并根据个人的优势和需求定制护理方案。研究结果有助于医疗服务提供者了解护理人员在临床环境之外的经历。

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来源期刊

Cleft Palate-Craniofacial Journal DENTISTRY, ORAL SURGERY & MEDICINE-SURGERY

CiteScore

2.20

自引率

36.40%

发文量

审稿时长

4-8 weeks

期刊介绍： The Cleft Palate-Craniofacial Journal (CPCJ) is the premiere peer-reviewed, interdisciplinary, international journal dedicated to current research on etiology, prevention, diagnosis, and treatment in all areas pertaining to craniofacial anomalies. CPCJ reports on basic science and clinical research aimed at better elucidating the pathogenesis, pathology, and optimal methods of treatment of cleft and craniofacial anomalies. The journal strives to foster communication and cooperation among professionals from all specialties.