What characterizes adolescent young carers? A multigroup comparative study

IF 1.8 4区医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-03-11 DOI:10.1111/cch.13244

Jade Pilato, Kristopher Lamore, Christel Vioulac, Eléonore Jarrige, Géraldine Dorard, Aurélie Untas

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Abstract

Context

To identify the characteristics of adolescent young carers (AYCs), studies in the literature have compared them with non-AYCs, but without considering that in the latter group, some face the illness of a relative whereas others do not.

Objectives

The aims of the study were (1) to identify the characteristics of AYCs as compared with adolescents who are not young carers but are facing the illness/disability of a relative, or adolescents not facing the illness/disability of a relative, and (2) to identify factors associated with being a carer within adolescents facing a relative illness.

Methods

A total of 4000 high school students (grades 10–12, mainly aged 15–17 years, 568 identified as AYCs, 1200 as adolescents facing the illness/disability of a relative without being a carer and 2232 as adolescents not facing the illness/disability of a relative) completed a self-reported questionnaire assessing sociodemographic characteristics, illness/disability in the family, caregiving activities (MACA-YC18 and specific emotional support scale), quality of life (KIDSCREEN-10) and mental health (GHQ-12). Chi-square tests, ANOVAs and logistic regressions were performed.

Results

AYCs scored lower on the quality-of-life measure compared with adolescents not facing the illness/disability of a relative (p < .001) and had poorer mental health compared with adolescents facing the illness/disability of a relative without being a carer and adolescents not facing the illness/disability of a relative (p < .001). Logistic regressions showed that youth were more at risk to be an AYC when they were females (p < .001), when they had an extracurricular job (p < .001), spoke another language at home (p < .01), had siblings and were one of the oldest siblings (p < .001), and when the relative had a serious or chronic physical illness (p < .001) and lived with the youth (p < .001).

Conclusions

These results highlight the importance of distinguishing AYCs, adolescents facing the illness/disability of a relative without being a carer and adolescents not facing the illness/disability of a relative to better describe AYCs, recognizing that as the level of care provided might change over time, adolescents facing the illness/disability of a relative without being a carer could become AYCs or inversely. The factors that emerged could be used by professionals to better identify AYCs.

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青少年照顾者的特点是什么？多组比较研究

背景：为了确定青少年照顾者（AYCs）的特征，文献中的研究将他们与非青少年照顾者进行了比较，但没有考虑到在后一群体中，有些青少年照顾者面临着亲属患病的问题，而另一些则没有：本研究的目的是：(1) 确定青少年照顾者与非青少年照顾者但面临亲属生病/残疾的青少年或未面临亲属生病/残疾的青少年相比的特征；(2) 确定面临亲属生病的青少年中与照顾者身份相关的因素：共有 4000 名高中生（10-12 年级，主要年龄在 15-17 岁之间，其中 568 人被认定为 AYCs，1200 人被认定为面临亲属患病/残疾但未成为照顾者的青少年，2232 人被认定为未面临亲属患病/残疾的青少年）填写了一份自我报告问卷，对社会人口特征、家庭中的患病/残疾情况、照顾活动（MACA-YC18 和特定情感支持量表）、生活质量（KIDSCREEN-10）和心理健康（GHQ-12）进行了评估。对这些指标进行了卡方检验、方差分析和逻辑回归：结果：与未面临亲属患病/残疾的青少年相比，青少年心理健康中心的青少年在生活质量方面的得分较低（p 结论：青少年心理健康中心的青少年在生活质量方面的得分较低（p）：这些结果凸显了区分 "亚健康青少年"、面临亲属生病/残疾但未成为照顾者的青少年和未面临亲属生病/残疾的青少年的重要性，以便更好地描述 "亚健康青少年"，同时认识到随着时间的推移，所提供的照顾水平可能会发生变化，面临亲属生病/残疾但未成为照顾者的青少年可能会成为 "亚健康青少年"，反之亦然。专业人员可以利用这些因素来更好地识别 "助人自助者"。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.