Patient, Family, Caregiver, and Community Engagement in Research: A Sensibility Evaluation of a Novel Infographic and Planning Guide.

IF 0.9 4区医学 Q4 REHABILITATION Physiotherapy Canada Pub Date : 2024-03-06 eCollection Date: 2024-02-01 DOI:10.3138/ptc-2021-0057

Andrew Theodore Giannini, Megan Leong, Kelvin Chan, Arman Ghaltaei, Eden Graham, Craig Robinson, Malvina N Skorska, Andrea Cross, Sharon Gabison

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Abstract

Background: Engaging patients, families, caregivers, and the community (PFCCs) throughout the research cycle ensures that research is meaningful for the target population. Although tools have been developed to promote PFCC engagement, many are lengthy, complex, and lack recommended behaviours. This study evaluated the sensibility of an infographic and accompanying planning guide for facilitating engagement of PFCCs in research.

Methods: Thirteen rehabilitation researchers reviewed the PFCC engagement tool and planning guide, participated in a semi-structured interview, and completed a 10-item sensibility questionnaire. Interviews were transcribed, imported into NVivo, and analyzed using direct content analysis. Median scores and proportions of responses for each of the 10 items in the questionnaire were calculated.

Results: Median scores for all questionnaire items were ≥ 4 on a 7-point Likert Scale. Participants reported the tool was easy to navigate, contained relevant items to promote PFCC engagement, and followed a logical sequence. Suggested modifications of the tool related to formatting, design, and changing the title.

Conclusions: The tool was deemed sensible for overt format, purpose and framework, face and content validity, and ease of usage and provides guidance to engage PFCCs across the research cycle. Further studies are recommended to assess the effectiveness of the tool to engage PFCCs in research.

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患者、家属、护理人员和社区参与研究：新颖信息图表和规划指南的感性评估。

背景：让患者、家属、护理人员和社区（PFCC）参与整个研究周期可确保研究对目标人群有意义。虽然已经开发了一些工具来促进患者、家属、护理人员和社区（PFCC）的参与，但其中许多工具冗长、复杂，而且缺乏推荐行为。本研究评估了信息图表和配套规划指南在促进 PFCC 参与研究方面的合理性：方法：13 名康复研究人员审查了 PFCC 参与工具和规划指南，参加了半结构化访谈，并填写了一份包含 10 个项目的感性问卷。访谈内容经誊写后导入 NVivo，并采用直接内容分析法进行分析。对问卷中 10 个项目的中位数分数和回答比例进行了计算：在 7 点李克特量表中，所有问卷项目的中位数得分均≥ 4 分。参与者表示，该工具易于浏览，包含促进 PFCC 参与的相关项目，并遵循逻辑顺序。建议对工具的格式、设计和标题进行修改：该工具在公开格式、目的和框架、表面和内容效度以及易用性方面被认为是合理的，并为 PFCC 参与整个研究周期提供了指导。建议开展进一步研究，以评估该工具在吸引家佣参与研究方面的有效性。

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来源期刊

Physiotherapy Canada REHABILITATION-

CiteScore

1.90

自引率

20.00%

发文量

审稿时长

>12 weeks

期刊介绍： Physiotherapy Canada is the official, scholarly, refereed journal of the Canadian Physiotherapy Association (CPA), giving direction to excellence in clinical science and reasoning, knowledge translation, therapeutic skills and patient-centred care. Founded in 1923, Physiotherapy Canada meets the diverse needs of national and international readers and serves as a key repository of inquiries, evidence and advances in the practice of physiotherapy. Physiotherapy Canada publishes the results of qualitative and quantitative research including systematic reviews, meta analyses, meta syntheses, public/health policy research, clinical practice guidelines, and case reports. Key messages, clinical commentaries, brief reports and book reviews support knowledge translation to clinical practice. In addition to delivering authoritative, original scientific articles and reports of significant clinical studies, Physiotherapy Canada’s editorials and abstracts are presented in both English and French, expanding the journal’s reach nationally and internationally. Key messages form an integral part of each research article, providing a succinct summary for readers of all levels. This approach also allows readers to quickly get a feel for ‘what is already known’ and ‘what this study adds to’ the subject. Clinician’s commentaries for key articles assist in bridging research and practice by discussing the article’s impact at the clinical level. The journal also features special themed series which bring readers up to date research supporting evidence-informed practice. The Canadian Physiotherapy Association (CPA) is the national professional association representing almost 15,000 members distributed throughout all provinces and territories. CPA’s mission is to provide leadership and direction to the physiotherapy profession, foster excellence in practice, education and research, and promote high standards of health in Canada.

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