I-Poems: A Window Into the Personal Experiences of Family Caregivers of People Living With Advanced Cancer.

IF 2.2 4区 医学 Q1 NURSING Nursing Research Pub Date : 2024-07-01 Epub Date: 2024-03-13 DOI:10.1097/NNR.0000000000000734
Charlotte R Weiss, Rachel Johnson-Koenke, Karen H Sousa
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Abstract

Background: To date, there is little understanding of how caring during advanced cancer can be a transformational experience for personal becoming for family caregivers (FCGs). FCGs experience personal becoming as they create their own meaning of health and illness and choose patterns relating to the self-identity of the past while reaching forward into the unknowns. Gaining greater insight into a potentially positive aspect of cancer caregiving can contribute to FCG well-being and quality of life.

Objectives: This article identifies I-Poems within cancer caregiver narratives and explores them for themes of personal becoming. The narrative environment created space for FCGs to construct and share their voices; at the same time, the analytic method of poetic inquiry provided the voice of the FCGs to be seen, heard, and contextually explored.

Methods: As a secondary analysis, we used five cancer caregiver narrative texts obtained from the primary study to create individual I-Poems. Each of the I-statements within the cancer caregiver narrative texts was lifted and repositioned into a poem format while retaining the chronological order and voice of the participant. We then explored the I-Poems for converging themes of personal becoming as emerged from the primary narrative-thematic analysis.

Results: I-Poems were created from each of the five participant caregivers' narratives and then explored for themes of personal becoming. Each of the participant stories is briefly introduced, followed by their I-Poem. We found that the I-Poems converged with emergent themes and provided a first-person representation of their caring journey and transformation of being.

Discussion: I-Poems are a postmodern form of poetic inquiry that can be used alongside thematic analysis to explore personal meaning of caring for someone with advanced cancer and how FCGs experience personal transformation of self. Although we found I-Poems to be a meaningful and useful form of analysis for some narrative data, we propose an evolved genre of poetic inquiry-We-Poems-to be used in dyadic nursing research and with FCGs who are in partnered relationships.

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I-Poems:晚期癌症患者家庭照顾者的个人经历之窗》。
背景:迄今为止,人们对晚期癌症护理如何成为家庭护理者(FCGs)个人成长的转变经历还知之甚少。家庭照顾者在创造自己的健康和疾病意义、选择与过去的自我认同相关的模式,同时向未知领域迈进的过程中,经历着个人成长。深入了解癌症护理的潜在积极方面有助于提高家庭护理者的幸福感和生活质量:本文确定了癌症护理者叙事中的 "我诗"(I-Poems),并探讨了这些 "我诗 "的个人成长主题。叙事环境为癌症护理者创造了建构和分享其声音的空间;同时,诗歌探究的分析方法使癌症护理者的声音被看到、听到,并得到了语境上的探索:作为二次分析,我们使用从主要研究中获得的五篇癌症护理者叙事文本创作了个人 I-诗歌。癌症护理者叙事文本中的每一句 "我 "都被提炼出来,并重新定位为诗歌格式,同时保留了时间顺序和参与者的声音。然后,我们对这些 I-Poems 进行了探讨,以寻找在主要叙事-主题分析中出现的有关个人成长的趋同主题:根据五位护理人员参与者的叙述分别创作了 I-诗歌,然后对个人成长的主题进行了探讨。我们简要介绍了每位参与者的故事,随后介绍了他们的 I-Poem 。我们发现,这些 I-Poems 与新出现的主题相吻合,以第一人称的方式展现了他们的护理历程和存在的转变:I-Poems 是一种后现代的诗歌探究形式,可与主题分析一起用于探索照顾晚期癌症患者的个人意义,以及家庭护理小组如何经历个人的自我转变。虽然我们发现 I-Poems 是对一些叙事数据进行分析的一种有意义且有用的形式,但我们建议将诗歌探究的一种进化体裁--We-Poems 用于双人护理研究和处于伴侣关系中的家庭护理小组。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Nursing Research
Nursing Research 医学-护理
CiteScore
3.60
自引率
4.00%
发文量
102
审稿时长
6-12 weeks
期刊介绍: Nursing Research is a peer-reviewed journal celebrating over 60 years as the most sought-after nursing resource; it offers more depth, more detail, and more of what today''s nurses demand. Nursing Research covers key issues, including health promotion, human responses to illness, acute care nursing research, symptom management, cost-effectiveness, vulnerable populations, health services, and community-based nursing studies. Each issue highlights the latest research techniques, quantitative and qualitative studies, and new state-of-the-art methodological strategies, including information not yet found in textbooks. Expert commentaries and briefs are also included. In addition to 6 issues per year, Nursing Research from time to time publishes supplemental content not found anywhere else.
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