The HOMESIDE Study-A Research Project to Support People Living With Dementia and Their Family Caregivers: Preliminary Report on Reading Intervention.

IF 2.1 Q3 GERIATRICS & GERONTOLOGY Gerontology and Geriatric Medicine Pub Date : 2024-03-20 eCollection Date: 2024-01-01 DOI:10.1177/23337214241239174

Agnieszka Smrokowska-Reichmann, Edyta Janus, Jeanette Tamplin, Helen Odell-Miller, Karette Stensæth, Jennifer Wenborn, Rønnaug Modell Viken, Thomas Wosch, Anna A Bukowska, Tanara Vieira Sousa, Felicity Anne Baker

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Abstract

The behavioral and psychological symptoms of dementia (BPSD) can be challenging for family caregivers to cope with, leading to distress and fatigue. It is therefore important to offer effective strategies to reduce the impact of BPSD. The HOMESIDE randomized controlled trial (RCT) was testing purposefully developed interventions to improve the quality of life and wellbeing of dyads of people with dementia and family caregivers as a result of reduction of BPSD. HOMESIDE RCT was conducted in Australia, Germany, Norway, Poland and the United Kingdom between 2019 and 2022. The study design was a three-arm parallel-group single-blinded, pragmatic RCT with a sample size of 432 dyads. Dyads were randomly allocated to one of three treatment conditions: Music Intervention plus Standard Care; or Reading Intervention plus Standard Care; or Standard Care only. The Reading Intervention (RI) within the HOMESIDE RCT aimed to evoke shared discussion, reminiscence, meaningful shared experiences and consequently enrich everyday life, interaction and the emotional connection between the caregiver (CG) and carereceiver (CR); as well as to enhance activities of daily living and to promote relaxation or stimulation as appropriate. This paper describes the underlying conceptual framework, the content, and delivery of the Reading Intervention within the HOMESIDE RCT.

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HOMESIDE 研究--支持痴呆症患者及其家庭照顾者的研究项目：阅读干预初步报告。

痴呆症的行为和心理症状（BPSD）对家庭照顾者来说是一项挑战，会导致他们感到困扰和疲劳。因此，提供有效的策略以减少 BPSD 的影响非常重要。HOMESIDE 随机对照试验（RCT）正在测试有目的地开发干预措施，以改善痴呆症患者和家庭照顾者的生活质量和福祉，从而减少 BPSD。HOMESIDE RCT于2019年至2022年期间在澳大利亚、德国、挪威、波兰和英国开展。研究设计为三臂平行组、单盲、实用性 RCT，样本量为 432 对。受试者被随机分配到三种治疗条件中的一种：音乐干预加标准护理；或阅读干预加标准护理；或仅标准护理。HOMESIDE RCT 中的阅读干预（RI）旨在唤起共同的讨论、回忆和有意义的共同经历，从而丰富日常生活、互动以及照顾者（CG）和被照顾者（CR）之间的情感联系；同时加强日常生活活动，促进适当的放松或刺激。本文介绍了 "居家养老 "研究项目中阅读干预的基本概念框架、内容和实施方法。

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来源期刊

Gerontology and Geriatric Medicine Medicine-Geriatrics and Gerontology

CiteScore

2.90

自引率

3.70%

发文量

119

审稿时长

12 weeks

期刊介绍： Gerontology and Geriatric Medicine (GGM) is an interdisciplinary, peer-reviewed open access journal where scholars from a variety of disciplines present their work focusing on the psychological, behavioral, social, and biological aspects of aging, and public health services and research related to aging. The journal addresses a wide variety of topics related to health services research in gerontology and geriatrics. GGM seeks to be one of the world’s premier Open Access outlets for gerontological academic research. As such, GGM does not limit content due to page budgets or thematic significance. Papers will be subjected to rigorous peer review but will be selected solely on the basis of whether the research is sound and deserves publication. By virtue of not restricting papers to a narrow discipline, GGM facilitates the discovery of the connections between papers.