[DEVELOPMENT AND VALIDATION OF QUALITY OF LIFE QUESTIONNAIRE FOR PARENT BURDEN OF CHILDREN WITH FOOD ALLERGY].

Q4 Medicine Japanese Journal of Allergology Pub Date : 2024-01-01 DOI:10.15036/arerugi.73.180

Toshiaki Kawano, Akihiro Takase, Daisuke Yasunari, Chikako Motomura, Masanori Ikeda, Teruaki Matsui, Mika Ogata, Shuichi Suzuki, Junichiro Tezuka, Mizuho Nagao, Natsuko Masumoto, Noriyuki Yanagida, Yukihiro Ohya

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Abstract

Objective: Quality of life (QOL) questionnaires for parents of children with food allergies have been developed in the United States and Europe. However, no original Japanese QOL questionnaire has been developed till date. We aimed to develop an original questionnaire to evaluate the QOL in parents of children with food allergies in Japan.

Methods: We collected QOL-related questions from parents of children with food allergies aged 0-15 years, and created a primary questionnaire. Responses to the primary questionnaire were obtained from the parents again, and question items were reduced using factor analysis to create a secondary questionnaire comprising eight items. In addition to the secondary questionnaire, responses to the Food Allergy QOL Questionnaire-Parent Form (FAQLQ-PF) Japanese version, Parent reported Health-Related QOL in children and adolescents (KINDL) and Health-related QOL (SF-8) were obtained from parents to assess the validity of the secondary questionnaire.

Results: A total of 407 parents completed all questionnaires. The secondary questionnaire scores were positively correlated with those of FAQLQ-PF and weakly negatively correlated with the KINDL and SF-8 mental component summary scores. Parents of children with food allergies with ≥3 culprit foods or severe reactions to daily foods, a history of anaphylaxis, and those carrying adrenaline autoinjectors scored higher and had lower QOL.

Conclusion: The developed original questionnaire is a valid QOL questionnaire for Parents of children with food allergies.

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[针对食物过敏儿童家长负担的生活质量问卷的开发和验证]。

目的：美国和欧洲已经为食物过敏儿童的家长编制了生活质量（QOL）问卷。但迄今为止，日本尚未开发出原创的 QOL 问卷。我们的目标是开发一份原创问卷，以评估日本食物过敏儿童家长的 QOL：方法：我们向 0-15 岁食物过敏儿童的父母收集了与 QOL 相关的问题，并制作了一份初级问卷。我们再次从家长那里获得了对初级问卷的答复，并通过因子分析减少了问题项目，从而制作了包含 8 个项目的二级问卷。除了二级问卷外，还从家长处获得了食物过敏QOL问卷-家长表（FAQLQ-PF）日文版、家长报告的儿童和青少年健康相关QOL（KINDL）以及健康相关QOL（SF-8）的回复，以评估二级问卷的有效性：共有 407 名家长填写了所有问卷。二次问卷的得分与 FAQLQ-PF 的得分呈正相关，与 KINDL 和 SF-8 精神部分总分呈弱负相关。对食物过敏的儿童中，主食≥3 种或对日常食物有严重反应、有过敏性休克病史以及携带肾上腺素自动注射器的儿童的家长得分更高，QOL 更低：结论：所开发的原始问卷是针对食物过敏儿童家长的有效 QOL 问卷。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Japanese Journal of Allergology Medicine-Immunology and Allergy

CiteScore

0.30

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0.00%

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期刊介绍： The Japanese Society of Allergology is made up of medical researchers and clinical physicians who share an involvement in the study of allergies and clinical immunology. Clinical subspecialties include such allergies and immune-response disorders as bronchial asthma, hypersensitivity pneumonitis, collagen disease, allergic rhinitis, pollenosis, hives, atopic dermatitis, and immunodeficiency. However, there are many patients afflicted by other allergies as well. The Society considers all such patients and disorders within its purview.

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