Health-related quality of life measurements in children and adolescents with refractive errors: A scoping review

Wei Wu , Lisha Yi , Kai Zhang , Zipei Chen , Caiping Shi , Chen Chen , Yilu Cai , Lidan Hu , Xiangjun Chen
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Abstract

Background

Refractive errors, particularly myopia, are the leading visual disorders worldwide, significantly affecting the quality of life (QOL) even after correction. This scoping review focuses on health-related quality of life (HRQOL) measurements for children and adolescents with refractive errors.

Main text

We explored generic and disease-specific HRQOL tools, examining their content, psychometric properties, and the impact of various interventions on QOL. Two English databases—PubMed, Embase, and one Chinese database, CNKI, were searched for relevant studies published from January 2001 to October 2023. Inclusion criteria encompassed studies using standardized instruments to assess the QOL of children aged 0–18 with refractive errors. The review compares prevalent HRQOL measurements, analyzes children's refractive error assessments, and discusses intervention effects on patient QOL.

Conclusions

The study underlines the necessity of developing disease-specific QOL instruments for very young children and serves as a practical guide for researchers in this field. The findings advocate for a targeted approach in HRQOL assessment among the pediatric population, identifying critical gaps in current methodologies.

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屈光不正儿童和青少年的健康相关生活质量测量:范围审查
背景屈光不正,尤其是近视,是全球主要的视觉疾病,即使在矫正后也会严重影响生活质量(QOL)。正文我们探讨了通用的和特定疾病的 HRQOL 工具,研究了它们的内容、心理测量学特性以及各种干预措施对 QOL 的影响。我们在两个英文数据库--PubMed 和 Embase,以及一个中文数据库--CNKI 中检索了 2001 年 1 月至 2023 年 10 月间发表的相关研究。纳入标准包括使用标准化工具评估 0-18 岁屈光不正儿童 QOL 的研究。该综述比较了普遍的 HRQOL 测量方法,分析了儿童屈光不正评估结果,并讨论了对患者 QOL 的干预效果。结论该研究强调了为年幼儿童开发特定疾病 QOL 工具的必要性,并为该领域的研究人员提供了实用指南。研究结果提倡在儿科人群中采用有针对性的方法进行 HRQOL 评估,并指出了当前方法中存在的关键差距。
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66 days
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