Working Together for Better Health: A United Effort to Support the National Strategy for Drugs for Rare Diseases in Canada

Abstract

February 29 is Rare Disease Day — an occasion that inspires action and solidarity to address the challenges and opportunities of rare diseases. To address the issues faced by patients with rare diseases, in March 2023, the Government of Canada announced a national strategy for drugs for rare diseases, with an investment of up to $1.5 billion over 3 years. The strategy aims to increase the accessibility and affordability of drugs for rare diseases for patients across Canada. CADTH-led initiatives are primarily related to improving the collection, use, and quality of evidence to inform and support decision-making.