Preliminary translation of ‘Reducing Disability in Alzheimer's Disease’ among individuals with intellectual disabilities and caregiver dyads

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-04-15 DOI:10.1111/jar.13239

Lauren T. Ptomey, Kelli Barton, Emma Swinford, Amy Bodde, Amanda George, Anna M. Gorczyca, C. Michelle Niedens, Susan C. Sprague, Amy Yeager, Brian Helsel, Linda Teri, Eric D. Vidoni, Jaime Perales-Puchalt

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Abstract

Background

The Reducing Disability in Alzheimer's Disease in Kansas City (RDAD-KC) intervention has been shown to improve the health of individuals with dementia and caregiver dyads. This manuscript reports the results of implementing the RDAD among individuals with intellectual disabilities and caregiver dyads.

Methods

Nine community agencies deployed the 12-week intervention. We assessed changes in individuals with intellectual disabilities' behavioural symptom related severity and physical activity, and caregivers' behavioural symptom-related distress, unmet needs, and caregiver strain.

Results

Forty-four dyads enrolled, and 23 (~60 years, 48% female) completed ≥75% of the intervention. We observed decreases in behavioural symptom related severity (p = .07) and increases in physical activity (p = .20) among individuals with intellectual disabilities. We also observed decreases in behavioural symptom related distress (p = .14), unmet needs (p = .50), and caregiver strain (p = .50) among caregivers.

Conclusions

The RDAD-KC intervention showed promising, although statistically non-significant, benefits among individuals with intellectual disabilities and their caregivers.

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减少阿尔茨海默病致残率 "在智障人士和照护者中的初步翻译

背景堪萨斯城减少阿尔茨海默病致残干预（RDAD-KC）已被证明可以改善痴呆症患者和照护者二人组的健康状况。本手稿报告了在智障人士和照护者二人组中实施 RDAD 的结果。方法九个社区机构部署了为期 12 周的干预措施。我们评估了智障人士行为症状相关严重程度和体育活动的变化，以及照护者行为症状相关困扰、未满足需求和照护者压力的变化。结果 44 个二人组参加了干预，其中 23 个（约 60 岁，48% 为女性）完成了≥75% 的干预。我们观察到，智障人士的行为症状相关严重程度有所下降（p = .07），体育活动有所增加（p = .20）。我们还观察到，在照顾者中，与行为症状相关的痛苦（p = .14）、未满足的需求（p = .50）和照顾者的压力（p = .50）均有所减少。结论 RDAD-KC 干预在智障人士及其照顾者中显示出良好的效果，尽管在统计上并不显著。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.