Use of Treatment and Self-Management Methods: Perspectives and Decisions of Patients With Ulcerative Colitis

IF 1.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH American Journal of Lifestyle Medicine Pub Date : 2024-04-03 DOI:10.1177/15598276241243300
Kelli E. DuBois, Christine E. Blake, Caroline Rudisill, Sayward E. Harrison, James R. Hébert
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Abstract

Patients with Ulcerative Colitis (UC) seek a variety of methods to manage the physical and psychosocial burdens of illness on daily life. This study examines how individuals with UC: (1) utilize treatment and self-management methods and (2) make decisions regarding their use of these methods throughout the disease course. Adults living with UC ≥5 years and experienced ≥1 disease flare, participated in individual, semi-structured qualitative interviews. Transcripts were thematically analyzed using a constant comparative approach in NVivo12®. Participants (N = 21) described their decisions to utilize medical, lifestyle, and complementary methods, which were shaped by sources of information, attitudes toward self-management, and personal motivations. The poor quality of life associated with the daily burden of living with UC emerged as a primary motive for exploration and utilization of treatment and management methods. Participants reported primarily utilizing treatment and management methods as reactive responses to flares instead of preventive measures. Results provide insight into patient decision-making and may inform individualized patient care, improve patient–provider communication, and guide interdisciplinary efforts to support self-management among patients with UC. Findings highlight a need for greater focus on promoting preventive self-management lifestyle behaviors to protect against disease activity and progressive impairment.
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使用治疗和自我管理方法:溃疡性结肠炎患者的观点和决定
溃疡性结肠炎(UC)患者会寻求各种方法来减轻疾病给日常生活带来的身体和心理负担。本研究探讨了 UC 患者如何:(1)利用治疗和自我管理方法;(2)在整个病程中就使用这些方法做出决定。患有 UC ≥5年且经历过≥1次疾病发作的成年人参加了个人半结构化定性访谈。访谈记录采用 NVivo12® 中的恒定比较法进行主题分析。参与者(N = 21)描述了他们利用医疗、生活方式和辅助方法的决定,这些决定是由信息来源、对自我管理的态度和个人动机决定的。与 UC 日常生活负担相关的生活质量低下是探索和使用治疗与管理方法的主要动机。参与者报告称,他们主要利用治疗和管理方法来应对病情发作,而不是采取预防措施。研究结果提供了对患者决策的深入了解,可为患者的个体化护理提供信息,改善患者与医护人员之间的沟通,并指导跨学科工作以支持 UC 患者的自我管理。研究结果突出表明,有必要更加重视促进预防性自我管理生活方式行为,以防止疾病活动和进行性损伤。
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来源期刊
American Journal of Lifestyle Medicine
American Journal of Lifestyle Medicine PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
4.10
自引率
15.80%
发文量
119
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