Marilyn A. Prasun PhD, RN, CCNS, CHFN, FAHA (Carle BroMenn Medical Center Endowed Professor) , Annette Hubbell PhD, RN (Assistant Professor) , Lisa Rathman MSN, CRNP, CHFN (Acute Care Heart Failure Nurse Practitioner) , Kelly D. Stamp PhD, NP-C, RN, CHFN, FAHA, FAAN (Associate Professor & Associate Dean of Academic Programs)
{"title":"The Heart Failure Patient Foundation Position Statement on Research and Patient Involvement","authors":"Marilyn A. Prasun PhD, RN, CCNS, CHFN, FAHA (Carle BroMenn Medical Center Endowed Professor) , Annette Hubbell PhD, RN (Assistant Professor) , Lisa Rathman MSN, CRNP, CHFN (Acute Care Heart Failure Nurse Practitioner) , Kelly D. Stamp PhD, NP-C, RN, CHFN, FAHA, FAAN (Associate Professor & Associate Dean of Academic Programs)","doi":"10.1016/j.hrtlng.2024.04.005","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><p>Heart Failure (HF) is a growing global public health problem affecting approximately 64 million people worldwide.</p></div><div><h3>Objectives</h3><p>The Heart Failure Patient Foundation developed a position statement to advocate for adult patients with HF to be an active participant in research and for HF leaders to integrate patients throughout the research process.</p></div><div><h3>Methods</h3><p>A review of the literature and best practices was conducted. Based on the evidence, the HF Patient Foundation made recommendations regarding the inclusion of adult patients with HF throughout the research process.</p></div><div><h3>Results</h3><p>Healthcare clinicians, researchers and funding agencies have a role to ensure rigorous quality research is performed and implemented into practice. Inclusion of adult patients with HF throughout the research process can improve the lives of patients and families while advancing HF science.</p></div><div><h3>Conclusions</h3><p>The HF Patient Foundation strongly advocates that patients with HF be involved in research from inception of the project through dissemination of findings to improve patient outcomes.</p></div>","PeriodicalId":55064,"journal":{"name":"Heart & Lung","volume":null,"pages":null},"PeriodicalIF":2.4000,"publicationDate":"2024-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Heart & Lung","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0147956324000578","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"CARDIAC & CARDIOVASCULAR SYSTEMS","Score":null,"Total":0}
引用次数: 0
Abstract
Background
Heart Failure (HF) is a growing global public health problem affecting approximately 64 million people worldwide.
Objectives
The Heart Failure Patient Foundation developed a position statement to advocate for adult patients with HF to be an active participant in research and for HF leaders to integrate patients throughout the research process.
Methods
A review of the literature and best practices was conducted. Based on the evidence, the HF Patient Foundation made recommendations regarding the inclusion of adult patients with HF throughout the research process.
Results
Healthcare clinicians, researchers and funding agencies have a role to ensure rigorous quality research is performed and implemented into practice. Inclusion of adult patients with HF throughout the research process can improve the lives of patients and families while advancing HF science.
Conclusions
The HF Patient Foundation strongly advocates that patients with HF be involved in research from inception of the project through dissemination of findings to improve patient outcomes.
期刊介绍:
Heart & Lung: The Journal of Cardiopulmonary and Acute Care, the official publication of The American Association of Heart Failure Nurses, presents original, peer-reviewed articles on techniques, advances, investigations, and observations related to the care of patients with acute and critical illness and patients with chronic cardiac or pulmonary disorders.
The Journal''s acute care articles focus on the care of hospitalized patients, including those in the critical and acute care settings. Because most patients who are hospitalized in acute and critical care settings have chronic conditions, we are also interested in the chronically critically ill, the care of patients with chronic cardiopulmonary disorders, their rehabilitation, and disease prevention. The Journal''s heart failure articles focus on all aspects of the care of patients with this condition. Manuscripts that are relevant to populations across the human lifespan are welcome.