Laura Gonzalo-Ciria, Ana Gascón-Catalán, Ana A Laborda-Soriano, Alba Cambra-Aliaga, María C Ruiz-Garrós, Marta Perez-de-Heredia-Torres
{"title":"Difficulties Fulfilling Self-Care Needs Among Family Caregivers: An Observational Study.","authors":"Laura Gonzalo-Ciria, Ana Gascón-Catalán, Ana A Laborda-Soriano, Alba Cambra-Aliaga, María C Ruiz-Garrós, Marta Perez-de-Heredia-Torres","doi":"10.5014/ajot.2024.050528","DOIUrl":null,"url":null,"abstract":"<p><strong>Importance: </strong>Assuming the care of a family member with a disability or chronic illness constitutes a health risk factor for caregivers, who frequently overlook their own self-care.</p><p><strong>Objective: </strong>To analyze the self-care activities (SCAs) among caregivers of a family member with a disability or chronic illness and assess the impact on their satisfaction and quality of life (QoL).</p><p><strong>Design: </strong>Descriptive, cross-sectional, analytic study.</p><p><strong>Setting: </strong>Community.</p><p><strong>Participants: </strong>Five hundred caregivers of family members with a disability or chronic illness in the city of Zaragoza, Spain.</p><p><strong>Outcomes and measures: </strong>The family caregivers' occupational performance and satisfaction were assessed with the Canadian Occupational Performance Measure, and their QoL was assessed with the World Health Organization-Quality of Life.</p><p><strong>Results: </strong>In total, 32.8% of family caregivers had difficulty in all activities related to self-care, 46.6% had difficulty sleeping and resting, 31.6% had difficulty receiving health-related treatments, and 31.2% had difficulty with physical exercise. Women and younger family caregivers showed greater impairment in self-care. Occupational performance, satisfaction, and QoL worsened as the number of affected activities increased.</p><p><strong>Conclusions and relevance: </strong>Caring for a family member with a disability or chronic illness has a negative impact on the SCAs of caregivers, especially among female caregivers and those of younger age. Caregiving is also associated with lower occupational performance, satisfaction, and QoL. Plain-Language Summary: Caring for a family member with a disability or chronic illness can become a health risk for caregivers, who frequently ignore their own self-care. The study results found that women and younger family caregivers showed a greater decline in self-care. This study provides information to help occupational therapists to work with family caregivers to prevent a decline in their self-care and improve their quality of life.</p>","PeriodicalId":48317,"journal":{"name":"American Journal of Occupational Therapy","volume":"78 3","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"American Journal of Occupational Therapy","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.5014/ajot.2024.050528","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 0
Abstract
Importance: Assuming the care of a family member with a disability or chronic illness constitutes a health risk factor for caregivers, who frequently overlook their own self-care.
Objective: To analyze the self-care activities (SCAs) among caregivers of a family member with a disability or chronic illness and assess the impact on their satisfaction and quality of life (QoL).
Participants: Five hundred caregivers of family members with a disability or chronic illness in the city of Zaragoza, Spain.
Outcomes and measures: The family caregivers' occupational performance and satisfaction were assessed with the Canadian Occupational Performance Measure, and their QoL was assessed with the World Health Organization-Quality of Life.
Results: In total, 32.8% of family caregivers had difficulty in all activities related to self-care, 46.6% had difficulty sleeping and resting, 31.6% had difficulty receiving health-related treatments, and 31.2% had difficulty with physical exercise. Women and younger family caregivers showed greater impairment in self-care. Occupational performance, satisfaction, and QoL worsened as the number of affected activities increased.
Conclusions and relevance: Caring for a family member with a disability or chronic illness has a negative impact on the SCAs of caregivers, especially among female caregivers and those of younger age. Caregiving is also associated with lower occupational performance, satisfaction, and QoL. Plain-Language Summary: Caring for a family member with a disability or chronic illness can become a health risk for caregivers, who frequently ignore their own self-care. The study results found that women and younger family caregivers showed a greater decline in self-care. This study provides information to help occupational therapists to work with family caregivers to prevent a decline in their self-care and improve their quality of life.
期刊介绍:
The American Journal of Occupational Therapy (AJOT) is an official publication of the American Occupational Therapy Association, Inc. and is published 6 times per year. This peer reviewed journal focuses on research, practice, and health care issues in the field of occupational therapy. AOTA members receive 6 issues of AJOT per year and have online access to archived abstracts and full-text articles. Nonmembers may view abstracts online but must purchase full-text articles.